New baby with T18 born in the Sacramento area. Need Trisomy positive pediatrician and cardiologist. Hospital told mom there was no chance of survival.
Trisomy A. replied:
That is difficult. I remember not being given much hope either. There is a website with newer studies/info ... some doctors are using older inof/studies that show there is not much hope. Try visiting http://www.internationaltrisomyalliance.com/ They have newer info and some booklets especially for new Trisomy families. I think it's great info they are sharing.