Those in HOUSTON:
Any recommendations for pediatric GIs? Also, for feeding therapy, how often do you get EI services? Any recommendations on how to increase feeding therapy services?
MichaelKarrie S. replied:
GI team through Texas Childrens Dr Bruno Chimpanchosti 832-824-1000 (spelling is wrong but anyone there will know him). As for a good therapy program we habe yet to find you that can make any progress with out GJ dependant 6 yr old she just needs to learn how to chew instead of pocket food.
i got a message for another Neuroblastoma parent seeking advise. If anyone can answer this. Please share the info. Thank you
Claudia Alonso
I need guidance and help my son carries neuroblastoma rodrigo 4 should make allogeneic transplantation someone can help or recommend hospitals that can do that sort of transplant? is the 3rd time we fought against cancer.el is eager to fight alone that in our country there is no such treatment
Christina B. replied:
I think most hospitals in the US that treat NB can do stem cell transplant with donor stem cells. You should trying contacting some of the major hospitals that treat NB. One of the major ones is CHOP (Children's Hospital of Philadelphia) 267-426-0762, You can try CHLA (Children's Hospital of Los Angeles) 323-660-2450, Texas Children's Hospital 832-824-1000, Cincinnati Children’s Hospital Medical Center 513-636-4200, Children’s Hospital Boston 617-355-6000, St. Jude Children’s Research Hospital 901-595-3300. I hope one of them can help you and we wish all the best for your child. No child should have to fight this cancer and especially not 3 times!
IF ANYONE KNOWS A DOCTOR THAT SPECLIAZES IN PREMIES THAT NEED HEART TRANSPLANT PLEASE POST HERE! SHARE THIS PAGE MAYBE A DOCTOR WILL STEP UP AND HELP THIS LITTLE GIRL
Amy P. replied:
Texas fetal center in Houston might be worth talking to. 832-325-7188. Texas children's hospital 832-824-1000 are supposed to be awesome as well.