HELLO!
Need recommendations!
I just had genetic testing done....... ugh I so need a natural minded health professionals help to sort this out and get me on the right path! Who have you seen? love them or no???
THANKS SO MUCH IT MEANS ALOT!!!
Anyone know of a gene specialist in Florida? I've got Lyme with mthfr and there has got to be a reason I can't detox right. My body and head is being poisoned all day. Any recommendations? I've done the 23 and me, but haven't done anything with the results cuz in not sure what can be done
Sharon B. replied:
Check out mthfrsupport.com, they have specialist who will do phone consults.
Who is the best dr to see about mthfr in Australia ?
I have been also suffering chronic daily headache weekly migraines and fatigue. My neuro has me on endep (not helping)wants me to start topomax
Would like to see someone knowledgeable with mthfr to see if it's the root of my problems and help me with what to and what not to take
Thanks any help would be great
Kate K. replied:
There is mthfrsupport.com.au haven't used but believe she was trained by Ben Lynch
Where is the best place to have the 23andme.com raw data interpreted?
Susan H. replied:
MTHFRsupport.com gave me the most mutations. I think it's 30$. It was 34 pages and listed both mutations and normal genes. Nutrahacker had less mutations and no normal genes listed but told me what each one did and what to take and not take with each one. I did the methylations and detox only for 37$. Nutrahacker has a free lite version you can run to see the style of their report before you pay. Genetic Genie is free and is limited but is a good place to start.
I just heard the 123andMe site doesn't do the MTHFR testing anymore! Is there another testing service here in the U.S.?
Anne C. replied:
There are two pieces - 23 & me which gives raw data, and then all the various interpretation programs. The one that gives me the most info to help patients is Sterling's app at MTHFRsupport.com. Genetic Genie is free but extremely limited. Some of the others give treatment advice, but it's based on individual SNPs, not patterns, and I have seen that approach backfire badly on occasion. 23&me still gives raw data, just doesn't make medical claims.
Hello! Does anyone know where I can get help with (+/+) MAO-A mutation? I have that combined with the (+/+) COMT V158M mutation. According to the Genetic Genie description, I fully possess the severe mood swings and aggressive and/or violent behavior. It's destroying my life and I feel helpless. I'm hetero MTHFR C677T. Thanks in advance.
Victoria S. replied:
Are you willing to see a practitioner? Ben Lynch's website and also www.mthfrsupport.com both have a referral section.
just got my 23and Me report, does anyone knows the place where you can find out what it means, there are some places i heard, thanks
Lisa K. replied:
I used MTHFRSupport.com and www.KnowYourGenetics.com I like MTHFRSupport because they provide links out to the research available on the genes. I learned a ton going through each gene and figured out a few things other than just the B vitamin stuff. I am a huge fan of Dr Yasko and follow her protocol. So, KnowYourGenetics.com is my go to place for practical application of the research.
Samantha M. replied:
www.geneticgenie.org (free - Methylation and Detox Report only.) - www.promethease.com ($5 - random things about all your genes, not methylation stuff in particular. WARNING: Do not use promethease unless you can handle finding your risk factors for de veloped diseases, such as types of cancer or alzheimers... if you do not want to know these things, use a different website.) www.mthfrsupport.com Sterling App ($20 - fairly large report that includes methylation, detox, IgA, IgG, tongue tie, celiac/gluten intolerance, etc.) - www. Livewello.com ($19 dollars and 90 some cents, don't know what this provides, go to their website and look at a sample report to see.) - Good luck! Oh yeah! You can also use www.KnowYourGenetics.com which gives you a free report provided by Dr. Yasko and even a protocol to follow, if you wanted... but it suggests lots of different vitamins and stuff that will cost a lot of money. You could buy other brands of similar products and get them cheaper or you could just use the report for ideas and informational purposes only. I think it's a handy report to have and for free, there is no harm in getting one and checking it out.
Is anyone able to highly recommend a Dr. in the Seattle area to help address MTHFR as well as other mutations?
Rebecca C. replied:
Maya -- after you get your 23 andme.com results you can use Sterling's App and have a consultation with her Sterling Hill Erdei she is SO knowledgeable and the founder of www.mthfrsupport.com and you can run your genetic data through www.knowyourgenetics.com and get some recommendations on what supplements to take. Good luck!
If anyone in the Northern VA/DC/Maryland area can recommend a doctor that would be great appreciated. I have an appointment next month with someone new, they don't accept insurance so it's self-pay so if I could find someone I know was recommended by someone with this condition I'd feel better. I already wasted a couple months waiting for an appointment with a doctor who I was told was knowledgable but turned out to not know so much about it. Any recommendations would he great :) thanks!
Carol S. replied:
Jenn Baldi-Chimenti . found this on mthfrsupport.comhttp://www.mthfrsupport.com/.../united-state/washington-d-c/
Where is the best place to find a MTHFR specialist . I live in California and there is a woman I'm Burbank who is a psychiatrist who calls herself a MTHFR specialist and evern treats people with chronic illness but she charges $450.00 per hour ! It infuriates me when physicians a) don't take insurance and b) prey of sick people looking for answers and c) think they are God and feel they can charge that kind of money. Even if I can afford it I just think it is b above that gets me so upset and refuse to go and pay that kind of money. There has to be someone else on California who doesn't charge an arm and a leg . Any suggestions?
Looking for a recommendation for a naturopath or alternative psychiatrist who is highly educated in MTHFR, 23andme and mental health issues. The more affordable the better. Please don't mention anyone who charges outrageous fees. Thank you so much! :)
Jen B. replied:
I am working with Jess Armine. He does phone consults, Colin. I've heard other patients of Jess Armine sing his praises as well. He's very good. I met him on the MTHFR Support Facebook page. Here is his website: http://www.drjessarmine.com/
Anyone know of a reputable treatment facility for a teen dealing with narcotic addiction? Parents looking for alternative ways to deal with this. Son got hooked on Oxycontin about a year ago. Thanks
Jess A. replied:
Diane...call me in the morning...610 449 9716...Dr. Jess
Ok so my next question is...Do any of you have a Dr in New York (Long island area) that actually knows about MTHFR? I was not even diagnosed until I was pregnant with my twins who are my last children of 5 living and found that it cost me my other two :(
No one seems to even know what it is. They all look at me like I'm making MTHFR up or something. Please help! I really need to get in to see a Dr who is well versed in this.
Marcia H. replied:
There are lists at SeekingHealth.org and MTHFRsupport.com.
Before I purchase the 23andMe. They only have the ancestry option and no longer the health option. Does it still show MTHFR and other clotting factors? I don't want to pay and wait for something that may not tell me what I need. Thanks in advance!
I already know im Compound Hetero, but keep having miscarriages and have had a blood clot. I'm only 23.
Lisa K. replied:
You get your entire genome sequenced. It's all there as it has been all along. YOu then need to go to other sites to help pull out the methylation information. There are a lot more genes involved than the MTHFR genes. I used MTHFRSupport.com and ...See More