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40 recommendations and reviews from 4 people
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Referral from
December 8, 2015
Reflex (. asked:I know Florida is "ground zero" for the war on opioids. I need the name of a pain specialist who will prescribe opiates for a person with long-standing CRPS or an addiction specialist who will help him tapper off. He lives near Fort Lauderdale. Any suggestions?Rainette M. replied:Call Him Jim Broatch at www.rsds.org. He always has the best referrels!
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Referral from
July 3, 2014
Reflex (. asked:Looking for a recommendation for an attorney in NJ familiar with CRPS and the workers compensation system? Thanks.
Denise B. replied:Here's some general info that might help. http://www.rsds.org/4/resources/finding%20 a%20 lawyer._wc.html
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Referral from
January 6, 2016
Kandy H. asked:Where is a good place for information for my 10 year old son who developed RSD on November 16? I'm having a hard time coming across information for pediatrics, especially drugs to help. He has been on gabapentin since December 23 and it hasn't helped.Reflex (. replied:Kandy, Email me at info@rsds.org and I'll email you much informatoion, also include where you live.
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Referral from
November 5, 2015
Kristy K. asked:My daughter has suffered chronic pain for about 2 years since breaking her leg and stpping gymnastics. She is 17 and has pain in all joints, chronic migrains, TMJ, ovarian cysts,fatigue and much more. We are now being told it is most likely CRPS/fibromyalgia with some JIA. Does anyone know a doctor and neurologist in the upstate NY area that knows anything about CRPS?Reflex (. replied:Kristy, email me at info@rsds.org
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Referral from
October 6, 2015
Sandi D. asked:Does anyone from south central PA know of a doctor that treats RSD?Reflex (. replied:email us at info@rsds.org and I'll share our PA referral list
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Referral from
August 21, 2015
Clare P. asked:Can anyone recommend a good Doctor in Minnesota that can help me with my RSD?Reflex (. replied:email me at info@rsds.org and we'll send our MN referral list
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Referral from
August 18, 2015
Danielle S. asked:Does anyone know of a doctor in NC? Preferably western NCReflex (. replied:please email me at info@rsds.org
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Referral from
July 14, 2015
Neeko R. asked:I have RSD of B/L UPPER extremities and one lower. I've had for about 8years.. My doctor emergently retired due to sickness leaving me with no medication or doctor to cover care.. I live in Suffolk county.. Anyone know any good doctors for RSDReflex (. replied:send me an email to info@rsds.org
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Referral from
May 24, 2015
Cikan V. asked:IS there an RSD doctor in or near the 92596. 92545, or surrounding areas? Cos I cant find one in nearly over 10 years...Reflex (. replied:Please email me at info@rsds.org and I'll send you our provider list for your state
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Referral from
May 7, 2015
Christine B. asked:I have a question for the group - can anyone recommend a physician that has done Ketamine infusions? I am looking for a doctor in Central NJ preferably...... Thanks!Reflex (. replied:Cand I'll send the listhristine, please email me at info@rsds.org
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Referral from
May 4, 2015
Melody H. asked:Looking for a physician knowledgeable in RSD/CRPS in the N Ms or Memphis TN area. Please help & thanks in advance.Reflex (. replied:please email me ar info@rsds.org
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Referral from
March 12, 2015
Kim S. asked:I am looking for a doctor or therapist anyone familiar with RSD in my area, even a support group would be helpful at this point. It has to be close by to my home area, because it affects my right leg and I cannot drive too long. I am in Hauppauge, New York in Suffolk county, on Long Island. Anyone who could pass along any information would be greatly appreciated.Reflex (. replied:If you email me at info@rsds.org, I'll send a treatment referral list for NYReflex (. replied:http://www.rsds.org/supportgroups.html#NY
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Referral from
February 27, 2015
Erica M. asked:Hello I am a 29 year old female. I have been struggling with chronic pain in my thumb hand and wrist. Started when I fell almost 3 years ago landed on my wrist and was in pain. Surgeon recommended tendon release surgery. After some hesitation I had the surgery. After the surgery I couldn't move my thumb or wrist without extreme pain. Went to two occupational therapists both have said that they felt I had rsd. Doctors did a bone scan and said no. Nerve pain was diagnoses. My doctor that was treating my pain finally had my pain under control with opioid treatment. However she left hospital and new doctor said removing them. Has me on nortriptaline. Doesn't help at all. I am back to square 1 not sleeping and in extreme pain and burning sensations like a fire burning. I'm in Massachusetts and I was wondering if anyone knows a specialist to help me.Reflex (. replied:Erica, email me at info@rsds.org and I'll email you a referral list for MA and RI
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Referral from
February 12, 2015
Stephen G. asked:Hi everyone ! I am looking for a Pain Management doc in the Grassy Meadows West Virginia area. I have a young lady in need down there and could use some help. Also if you know of a local support group around there it would help immensely !!!Reflex (. replied:email me at info@rsds.org and I'll email our WV list
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Referral from
February 10, 2015
Cindy S. asked:Looking for RSDS doctor in Oklahoma. I have had RSDS in my left lower leg/foot for 18 years and bone depletion is getting bad. Any help would be appreciated.Reflex (. replied:Hi Cindy, please send your email address to info@rsds.org
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Referral from
February 4, 2015
Katrina B. asked:Looking for RSD doctor in Fort Meyers Florida. Please help if you canReflex (. replied:please email us at info@rsds.org
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Referral from
February 4, 2015
Christine A. asked:Anyone know of a great pain specialist or someone with knowledge of RSD in Tucson Arizona area?Reflex (. replied:email me at info@rsds.org
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Referral from
January 13, 2015
Reflex (. asked:I need a recommendation for a pain specialist familiar with treating CRPS in Toledo, OH. Thank youReflex (. replied:RSDSA does maintain a state-by-state list of practitioners interested in treating CRPS. To receive this list, please send an email to info@rsds.org
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Referral from
November 19, 2014
Reflex (. asked:Looking for a recommendation for a experienced hand therapist familiar with CRPS near Duluth, MN Thank you!Reflex (. replied:Lida, please email me at info@rsds.org and perhaps I can help re a hand therapist in FL
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Referral from
October 20, 2014
Amber F. asked:I just stumbled upon this page and was curious if there are any recommendations for RSD. My significant other crushed his Right hand at work in April 2011. No one could diagnose what was wrong. After 3 years and seeing over 6 doctors someone finally brought up "RSD." He know goes to PT 3 days a week, sees a psychiatrist and receives biotherapy. Unfortunately nothing has helped. It has spread up his arm, onto his chest and onto his left hand (not as severe as his Right hand.) He is in chronic pain all the time. Doesn't sleep. The biggest down fall, he's only 27. Can someone please give me some recommendations on doctors they seen, medicine they took..anything :/Reflex (. replied:Watch all the videos, any questions, please email me at info@rsds.org
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Referral from
August 26, 2014
Jenny L. asked:Does anyone know of any doctors in or around the central Pennsylvania area that specialize in CRPS? Thank you! I'm sorry for everyone dealing with this horrible condition. My mom is now suffering from it after breaking her arm and wrist by falling on black ice in December.Reflex (. replied:Jenny, Please email me at info@rsds.org and I'll send you our provider list for PA
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Referral from
August 26, 2014
Debora P. asked:I'd like to purchase a RSDSA tshirt for my daughter who has RSD. Can anyone tell me where I can get one?Reflex (. replied:Debora, email me at info@rsds.org with your size and postal address and we'll send one. Cost is $20 and we'll bill you. Thank you.
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Referral from
July 22, 2014
Stacey H. asked:Does anyone know of an CRPS/RSD Doctors in the Virginia area?Reflex (. replied:email me at info@rsds.org and we'll email our list
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Referral from
July 2, 2014
Susan P. asked:I need to find a Physician in or near Bluffton SC that is knowledgeable in RSD and treatment. Can anyone help me?Reflex (. replied:email us at info@rsds.org and we will send a list of websites to review and our limited SC referral list
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Referral from
June 24, 2014
Cindy N. asked:I've had CRPS for about 2yrs now. I'm in search of a doctor near Lincoln park, MI who specializes in RSD compared to just a pain management doc. I have a spinal cord stimulator which helps but now I fear it's spreading to my legs/feet now(as I only have it in upper extremities). Does anyone know of any docs in my area?Reflex (. replied:what is your email? Email me at info@rsds.org
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Referral from
June 11, 2014
La R. asked:I am in desperate need of a RSD/CRPS Specialist--Please let me know if you have one and where they are located. I am willing to travel------LoriReflex (. replied:First, let's start where you live and also email me at info@rsds.org
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Referral from
June 9, 2014
Robin R. asked:We need a doctor in or around Indiana that is knowledgeable about RSD. Our 21 year old daughter has been dealing with this disorder for 5 years now, and we are extremely frustrated with our experiences so far. We are in North Central Indiana. Thank you!!!!Reflex (. replied:please email us at info@rsds.org and we'll send our IN list
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Referral from
June 9, 2014
Kelli L. asked:Hi I'm looking for a rsd specialist in Maryland that is not in Baltimore the help is appreciated thank you:)Reflex (. replied:please email me at info@rsds.org and I'll share our provider list
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Referral from
May 28, 2014
Alison S. asked:Has anyone dealt with doctors not believing in their diagnosis of RSD/CRPS? Recently found out that the pain management doctors I had been seeing do not believe that CRPS is a real condition. Also does anyone know of any good pain management doctor in the Norfolk/Hampton Roads area?Reflex (. replied:First, I would make a complaint to the state or county medical board. Please email your email address to me at info@rsds.org and I'll send you our VA list
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Referral from
March 31, 2014
Nikki L. asked:I live in upstate New York and have suffered with RSD for 13 years. My current dr can no longer see me and my PCP can only do so much. Any dr recommendations in my area? I'll travel to NYC also as that's where my last dr was.Reflex (. replied:please email me at info@rsds.org and I''Reflex (. replied:will send our referral list. A referral from a support group might be possible too, http://www.rsds.org/supportgroups.html#NY
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Referral from
March 21, 2014
Robin R. asked:I have had this disease since 1994. It has gotten to the point where I can hardly walk. I live in Florida can anyone suggest a pm doctor in Martin County. I have been seeing someone for the past 15 years they recently moved farther south and can't take that long trip any longer. I need helpReflex (. replied:robin, what is your email address (send to me at info@rsds.org)? I'll send our FL provider list
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Referral from
March 17, 2014
Reflex (. asked:Looking for a recommendation for a physical or occupational therapist familiar with treating CRPS in Louisville, KY. Any suggestions?
Reflex (. replied:I would love to have the addresses of the physicians and therapists named for our referral list, info@rsds.org Thank you
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Referral from
January 11, 2014
Nanc S. asked:Plz help in need of an attorney. As to why Well long story short there is some major issues within my hospital reports from ER visits that is completely fabricate as well as seriously damaging to any current and future care. There has been little issues here and there before( like x-rays reports saying body parts seen that was removed 5yrs prior) corrections were made. This however this time it's major. If I could only suggest one thing to any one "Watch your medical records closely." I have had RSD since 1996. I'm almost to tired to fight for the right to do more then just exist. I want some type of life back. I want to play &walk with my grandson. I live in central Illinois, I also need a Dr that know how to treat RSD compassionately, not to fill his checkbookReflex (. replied:Chicago OK? Peter Higgins, Esq. 312-857-1710 If you email me your email address to info@rsds.org, I'll send you our IL referral list
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Referral from
April 25, 2013
Jennifer A. asked:Hi. I'm 39, single mother of 2 children and I have just been diagnosed with RSD 5 days ago after an ankle injury (4 weeks ago) which damaged my peroneal nerve (and some ligaments). I don't meet my specialist for another week. I really don't have any idea what I should be doing or not doing at this point as I understand this is a critical stage? I have heard to not use ice....good to know cause I had still been icing almost daily because I thought the swelling was still bad from the original injury. I have heard to try to elevate as much as possible. It seems like I've been increasing in the duration of my pain, daily and up to about 3-4 hours a day. The pain is mostly in the evening which I have been taking a vicodin for. I am having sharp pains in my foot, achy feeling in my calf and shin. The past few days I am noticing both my wrists are hurting a little. Twice in the past week I have had these borderline fainting spells where I thought I was going to pass out (dizzy, lightheaded, very weak). Any suggestions would be great. I am also looking for recommendations for a specialist in Orange County, CA. Thank you!Reflex (. replied:we can send you our provider list if you e-mail us at info@rsds.org
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Referral from
January 2, 2015
Reflex (. asked:Looking for a recommendation for a dentist in the New Haven area familiar with treating individuals with CRPS. Thank you.Jim B. replied:Enid, please email your email address to me at info@rsds.org. Please give my regards to Jan. I have some names
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Referral from
August 13, 2014
Jillian F. asked:HELP: my aunt was diagnosed with RSD and continues to receive conflicting therapy messages from doctors. She lives in MA - best doctor? Physical therapist? Thanks in advance!Jim B. replied:If you email me at info@rsds.org, I'll send our MA provider list
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Referral from
August 13, 2014
Tisha M. asked:Anyone know of a good CRPS doctor within or near Indian River County in Florida?Jim B. replied:please email me at info@rsds.org and I'll send you our FL provider list
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Referral from
September 23, 2013
Reflex (. asked:Any suggestions for a WC attorney familiar with CRPS near Kokomo, IN? Thank you.Jim B. replied:try calling an upstate support group: http://www.rsds.org/supportgroups.html#NY RSDSA :: Reflex Sympathetic Dystrophy Syndrome Association www.rsds.org CRPS (RSD) Association of NY StateContact: Marsha Rothstein-Laino, RN RSDSA Regi...stration Number: 12956 Tel: 516.221.7220, E-mail: MarshaTheNurse@gmail.comSee More
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