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Lymeaid UK
About us
Lyme Disease is most commonly misdiagnosed as ME/Chronic Fatigue Syndrome or fibromyalgia; patients are frequently told their illness is in their head and no treatment exists.
A positive Lyme Disease test is the difference for most people between getting treatment on the NHS or not; or being able to successfully fundraise for private treatment or not.
This charity exists to help sufferers where the NHS test is insufficient, and can lead to misdiagnosis and ineffectual treatment.
No test exists to rule out Lyme Borreliosis [http://www.lymediseaseaction.org.uk/about-lyme/diagnosis/] but the majority of NHS doctors will not treat based on a clinical diagnosis alone.
The NHS relies on 2-tier antibody testing which does not allow for undulatory antibody response, lack of antibody production due to biological variation, variation in performance between different test manufacturers or abrogation of antibody production by steroids or early insufficient antibiotic treatment.
On the other hand, overseas labs have CE marked tests which either do not rely on antibody testing or do more sensitive antibody testing with additional "bands" not included on the NHS tests, giving less chance of a false negative test.
Unfortunately for many of those suffering with Lyme Disease symptoms, these tests cost in the region of £500 per person, which is an inaccessible expenditure for many - especially those who have been ill for so many years that they can no longer work. That's where we come in.
With the donations received through our fundraising, we aim to fund the overseas tests for UK patients, so that fewer people need to suffer the consequences of an incomplete diagnosis. If we can sufficiently raise the profile of this cause, then perhaps the NHS will take note and reconsider their options too.
A positive Lyme Disease test is the difference for most people between getting treatment on the NHS or not; or being able to successfully fundraise for private treatment or not.
This charity exists to help sufferers where the NHS test is insufficient, and can lead to misdiagnosis and ineffectual treatment.
No test exists to rule out Lyme Borreliosis [http://www.lymediseaseaction.org.uk/about-lyme/diagnosis/] but the majority of NHS doctors will not treat based on a clinical diagnosis alone.
The NHS relies on 2-tier antibody testing which does not allow for undulatory antibody response, lack of antibody production due to biological variation, variation in performance between different test manufacturers or abrogation of antibody production by steroids or early insufficient antibiotic treatment.
On the other hand, overseas labs have CE marked tests which either do not rely on antibody testing or do more sensitive antibody testing with additional "bands" not included on the NHS tests, giving less chance of a false negative test.
Unfortunately for many of those suffering with Lyme Disease symptoms, these tests cost in the region of £500 per person, which is an inaccessible expenditure for many - especially those who have been ill for so many years that they can no longer work. That's where we come in.
With the donations received through our fundraising, we aim to fund the overseas tests for UK patients, so that fewer people need to suffer the consequences of an incomplete diagnosis. If we can sufficiently raise the profile of this cause, then perhaps the NHS will take note and reconsider their options too.
Recommendations and reviews from 1 person
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Referral from
September 25, 2014
Kate R. asked:Heeeelp! Tech advice please! I need to set up a website & business email. Sifting through the bollocks,I think I need to buy a domain name,hosting space,&some kind of Web design package as I can't code,or afford a designer. Anyone got any recommendations on who to use &how much this should cost? It's all VERY confusing. Does email automatically get included? Arrrgh! Thanks in advance!
Ste H. replied:Most hosts have install wizards for the likes of joomla its very modular and there's loads of support for customisation. Made this with it WWW.lymeaiduk.com
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