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MTHFR
137 recommendations and reviews from 80 people
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Referral from
September 6, 2017
Gabriela B. asked:Does anyone buy bulk b12 supplements? I need recommendations. Thanks a bunch!Tuula M. replied:Check your MTHFR status before supplementing B vitamins. Over 40% of us have a gene variant that "inhibits absorbtion". Synthetic supplements can make us worse. MTHFR.net is a good start.
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Referral from
March 9, 2017
Jennifer W. asked:Anyone here familiar with mthfr testing? If so where did you get testing done? I was looking online at options for mail in kits but thought maybe someone here would have a recommendation. Thanks.Naomi K. replied:Dr Lynch's site (MTHFR.net) lists test options too.Dianne F. replied:My primary care ordered my test. Came back as positive for the MTHFR mutation. This was all through Lutheran Health. Insurance covered it.Manda F. replied:I actually had a full panel of testing done including mthfr mutation at my obgyn. Do research beyond the testing there is a lot to this mutation as i have found since knowing i have it
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Referral from
December 29, 2016
Andrea P. asked:I need help please, my doctor told me I have fibromyalgia and I just would like to know, what can I do to help to ease the pain and if it can be cure and how. Any advice will be very much appreciated, thanks in advance!Leigh J. replied:Mag group and have a look a mthfr.net sorting our methylation has helped so much for us
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Referral from
August 19, 2016
Jessica W. asked:Is there a directory of doctors who special in MTHFR somewhere?Sara W. replied:Yes! Mthfr.net I used a doctor there. Love her.Autumn T. replied:Www.mthfr.net
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Referral from
August 14, 2016
Kimberlee C. asked:Can anyone recommend a doctor that would do an online/phone consult for hashimotos and mthfr. Maybe read my 23andme results and formulate a diet/supplement plan?Luciana C. replied:You can check this website that has s list of doctors for mthfr and you can call them about the other diagnosis http://mthfr.net
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Referral from
August 12, 2016
Carrie M. asked:I'm trying to find a doctor who will interpret my mthfrsupport report by Skype, phone, or email. I've contacted 5 different doctors and am getting nowhere. If you have a doctor who has recently interpreted your report from a distance, would you mind giving me his/her name. You can leave it here if you feel comfortable or send it to me in a pm. Thank you!!Candace A. replied:I believe there's a website, mthfr.net??, that has a list of doctors across the nation and some do Skype calls!
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Referral from
May 2, 2016
Kerry D. asked:Does anyone know how to check for The MTHFR genes once you receive the 23andme reports back? I can't seem to maneuver through the website to find that particular informationCheryl P. replied:these sites are to give us the information we need. 23 just tests the Dna. but results are in the raw data file. download that and import into genetic genie. read more on mthfr.net :)
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Referral from
December 11, 2015
June W. asked:Carol Savage and all u guys what is a good way to get some FOLINIC ACID into my diet i am scared of supps and not quite at the point of taking them so w without supplementing hmmmm mabey its not possible without supplemetation i figured this is a good one to ask are there any food or herb sources i can try to add to up folinic acid thanks!Bea F. replied:Okay June Whitehead. the point of this group is that some of us, and maybe you, have genetic mutation [a tiny one] which means we cannot create the enzyme that changes dietary forms of folate [folinic acid etc] into the form which can be used inside our cells. Most of us therefore take an already changed form in a tablet or capsule. beginning to deal with this is daunting and it can become a bit complex. But I think you may need to explore some of the info around. maybe start with mthfr.net
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Referral from
August 30, 2015
Angel N. asked:Anyone know of a doctor who treats MTHFR gene mutation in Atlanta area?Chad Y. replied:check mthfr.net
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Referral from
August 15, 2015
Lisa C. asked:I live in New Orleans, LA. I am looking for physician recommendationsKristin M. replied:Seekinghealth.org. ....mthfr.net??
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Referral from
August 12, 2015
Sarah M. asked:Suggestions for a naturopath in the Chicago area?Marcia H. replied:MTHFR.net and SeekingHealth.org have lists of doctors.Joie V. replied:naturopath or Mthfr specialist/competent Doctor?
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Referral from
August 10, 2015
Yvonne W. asked:Help, Desperate situation. Please I need the name of a doctor in or around Johnson City TN or Knoxville.Stacy V. replied:Are you able to search mthfr.net for a doctor? There is a list on there.
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Referral from
August 8, 2015
Kobra D. asked:What is the best way to find a doctor in my area that is well versed in MTHFR?Schuyler H. replied:Mthfr.net has a list of Drs that know how to treat.
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Referral from
July 29, 2015
Angie M. asked:Is there a list of doctors nationwide who are familiar with MTHFR? My PCP is clueless.Marcia H. replied:MTHFR.net and SeekingHealth.org have doctors listsLynne T. replied:Inquiring mthfr minds want to know!Jenne D. replied:Fertility doctors seem to know quite a bit about MTHFR sine they test all women for it...Marcia H. replied:If you found one that's familiar with MTHFR, that's good. I would wait till October.
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Referral from
July 12, 2015
Vonda H. asked:Anyone in Ohio have a good doctor? Naturopath?Gail R. replied:Shawn Bean is NOT a medical professional, never had any formal training in medicine. Has NO licence to practice anything. Before you work with him, check out the MTHFR Practitioner Reviews.Linda D. replied:How is Shawn Bean training anyone!?!?! There is another person on sterling's Page asking Shawn for a refund saying he ordered Thousands of dollars in test Through Jess Armine then gave her virtually nothing. Yes please check the MTHFR practitioner review page. I would never recommend Shawn Bean. I have never personally used him but I have seen numerous complaints.
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Referral from
July 2, 2015
Joan B. asked:Is there a difference in the protocols, etc. of Drs. Lynch and Yasko? Does Dr. Yasko also have a list of certified or trained practitioners? I found a local practitioner on Dr. Lynch's site...Marcia H. replied:Yes, they are different. Dr. Lynch is MTHFR.net and SeekingHealth.org, and Dr. Yasko has something called a simplified protocol that you can look up. I'm a Dr. Lynch fan, myself. This video has some info about starting out on methyl supplements. It's at least half way in, I think. http://highintensityhealth.com/ben-lynch-histamine-mthfr-overmethylation-asthma/Angela G. replied:Nancy Gummer, that would be good feedback for MTHFR.net. Their list is created by physicians that have completed a certain number of Dr. Lynch's seminars and who wish to be on the site. Sounds like that doc didn't want to be on the site...Chelsea W. replied:most of Heartfixer's diagrams are from Dr. Yasko's book "Genetic Bypass" which is free at www.knowyourgenetics.com. She published this in 2005! "Autism Pathways" outlines her whole protocol and it is worth reading even for those without autism especially for the important info on glutamate/gaba balance and diet. Dr. Nancy Mullan MD does free Tuesday 5 pm Pacific conference calls (she is off for a couple of weeks but sign up for her emails and you will be alerted when she is back) and on almost every call she guides someone through beginning Dr. Yasko's protocol and she suggests fewer sups than are on the "Simplified Protocol." She helped Dr. Y edit her book on biochemical lab testing so she has insights on that too. Dr. M often recommends starting by opening an ALL in ONE and taking what will fit on the flat end of a toothpick. This is how I would start if I started today. From there I would add in sups based on biochemical labs purchased thru Holistic Heal and in consultation with my doctor going over Dr. Yasko's comments on the test. https://chronicdiseaserecovery.wordpress.com/2013/04/30/mthfr-and-lithium/ http://nancymullanmd.com/dr-amys-folate-folic-acid/Chelsea W. replied:I think the main reason Dr. Yasko's sups have worked for me and my family when others didn't is she adds l-biopterin, a BH4 precursor, to some of her supplements. I have people in my family with and without COMT, with and without MTHFR so we vary in how many methyls we need but we have all responded to Dr. Yasko's sups. And it isn't just something in my genetics because my hubby is off all three BP meds he was on prior to her sups.Chelsea W. replied:I've seen that supp, Marcia, and I've heard some people really like it but I don't know my tyrosine level so I stick with Yasko's sups with l-biopterin. BH4 is needed to convert tyrosine to dopamine so for some people that supplement could be counterproductive. Dr. Yasko on tyrosine: "Tyrosine is important in the formation of dopamine, a NT which plays a critical role in attention, focus, reward motivated behavior, as well as mood. Cross check your levels of tyrosine with dopamine on a NT test, and with the break down products of dopamine on a MAP test for an overall sense of the status of the pathway from tyrosine to dopamine. For low tyrosine levels, consider AminoAssist support. If needed, you can consider low dose support for dopamine. High levels of tyrosine may generate a smell of “cabbage” from your body. High levels of tyrosine may indicate a lack of BH4 which is needed to convert tyrosine to dopamine. Suspect a lack of BH4 particularly if tryptophan and phenylalanine are also elevated. Low dose BH4 as well as MTHFR A1298C Liver Support capsules may be a help when this is the case." http://feelgoodbiochem.com/chapter-5/ The Yasko sups that have l-biopterin are mtfhr1209 liver caps (LIVER LONGER at Cloud Nine) and the CBS/NOS kidney caps, Methylmate A and Metal Away. The Cbs/Nos kidney caps have hydroxy B12 so technically Dr. Yasko likes it added in after getting lithium into range. The CBS/Nos caps also have intrinsic factor and this has been one of my top sups and I suspect the intrinsic factor is important for me. The Methylmate A is a supp she has people add in later and it has very low dose SAMe and pspepc. I send that to my mom because I know her providers won't cut up SAMe tablets or squeeze out pspepc caps. She was on the All in One and Be Calm for quite a while before I added that in. The metal away is for metal detox and I've seen Dr. Yasko recommend it on tests. Interestingly, I noticed her newer supp detox supp "Detox Away" doesn't have l-biopterin.Nancy G. replied:I found practitioners listed on Dr Lynch's site. When I called them it turned out they actually knew nothing about MTHFR but were interested. I'm guessing these names came from some mailing list or something.
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Referral from
June 17, 2015
Ann-Marie O. asked:I'm looking for a comprehensive list for Methylation practitioners. I went into files section and there was only one document that looked like what I was looking for, but when I pressed link, it said page not available. Can someone direct me to a link of practioners, please? Any help I can get would be appreciated. Thanks. The files section is a little overwhelming to someone who is cognitively impaired like me, and looks like it's mainly people's personal reports.Vanessa H. replied:othey have links to practioners.n www.MTHFR.net
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Referral from
June 12, 2015
Cindy H. asked:Is a geneticist a good Dr to see for MTHFR mutation? Im at a loss and need all the help I can get. Thanks.Marcia H. replied:From the posts I have read, I would be sure to ask the geneticist if they have treated MTHFR and if they use nutritional solutions. Many of them don't really know about MTHFR according to people on these groups. A functional medicine doctor or integrative medicine person or a naturopath often know more because they have experience. But you have to ask them, too. It's still pretty new. Some groups have practitioner lists. MTHFR.net has a list.Denise S. replied:Go to MTHFR.net, Dr. Ben Lynch's site, and use the doctor locator. That's how I found someone. At least you know they're trained.
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Referral from
June 12, 2015
Ellie C. asked:I'm looking for a physician in the Clearwater, FL area who treats MTHFR - or at least recognizes it - and other complications like thyroid, PCOS, food allergies, the usual. TIA!Teddie M. replied:MTHFR.netLauren K. replied:I don't know how far you are from Orlando (if you're in Clearwater, it shouldn't be too bad). Dr Maggie Ruiz is a functional medicine doctor who's obtaining her MD soon. She says she very experienced with mthfr, and her prices are very reasonable). I don't have any reviews on her.Nicole W. replied:Minkoff - don't know if he knows MTHFR though
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Referral from
May 20, 2015
Pamela S. asked:Results in: have the. 677 gene. Don't even know where to start. I always welcome any recommendations. Many thanks!!!Marcia H. replied:MTHFR.net and Dr. Lynch's podcasts and videosTerry T. replied:Hours n hours n hours of research,,,,said earlier I need a book called MTHFR for Dummies. LolDebbie B. replied:She is a scientist who has written several books on methylation And has a lot of info on mthfr and other genetic issues.@dramyyasko.com
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Referral from
May 18, 2015
Kristen N. asked:I've had 2 miscarriages in the past 2 years... found out I have Hashimoto's- addressed that. And found out I have MTHFR and other muts... I'm wanting to try for another baby again soon. Can someone please tell me if treating MTHFR will reduce my changes of miscarrying again? (and recommendations for a good practitioner to help me address it. Carol- Do u do consults?)Stephanie F. replied:Great information on MTHFR.netMarisa M. replied:Daily lovenox shots - that's what I had to take after 3 miscarriages and learning I had MTHFR. My regular OB advised me through it all. But seeing a high risk pregnancy dr might be better depending on your situation. They should be able to advise you in the best care for your situation.Angela V. replied:I'm in a recurrent miscarriage/mthfr/clotting disorders group called lovenox ladies. I can try to add you if you like.Colleen M. replied:I conceived (and lost) several times before finding out I had MTHFR. I now take some supplements and was able to successfully have a baby boy who will be 9 this year. I'm in the TTC period again hoping to give my son a sibling, but having difficulties conceiving. I believe some, if not all of the issues are related to my age (39) and endometriosis.Natalie S. replied:Sorry to hear about your losses. I am homozygous A1298C and had 2 miscarriages of genetically normal embryos. Dr. Braverman in Woodbury, NY helped treat my immune system and now I have a four month old. Generally MTHFR treatment is Lovenox and methylated folic acid - (I took Xymogen prenatals which had this). Since you have Hashimotos it is likely you have endometriosis as well and Braverman will likely send you to a surgeon to have that removed. It's important to get a surgeon who know what he is doing though - that seems obvious but from my research a lot of surgeons do not know what they are doing w regard to endo. Best of luck!!
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Referral from
April 28, 2015
Jill C. asked:I've looked in the Files and did a search but couldn't find an answer.... Does anyone have a really GOOD doctor that really KNOWS MTHFR who practices in the St. Louis, MO area? TIA!Jen T. replied:These are the doctors listed in MO on mthfr.net, Dr. Ben Lynch's web site: Missouri Emily Hecker DC, CNC, BS Thrive for Life | Integrative Nutrition Frontenac, MO www.thrive4 lifeNOW.com Robert Kessinger, DC Kessinger Health & Wellness Diagnostics Centre Rolla, MO www.drkessinger.com Rhonda Simons, DO Image Evolutions – Wellness & Beauty Kansas City, MO www.drsimonssays.com Rajiv Yadava, DO Des Peres Hospital St. Louis, MO https://sites.google.com/site/drrajivyadava/Marcia H. replied:There's also a list at MTHFR.net
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Referral from
April 23, 2015
Dan B. asked:Does this group keep a list of MTHFR practitioners who do calls or Skype consultations? Any specific recommendations? Thanks.Stephanie J. replied:Try www.mthfr.netTim J. replied:Sterling has a list on her site. I work with a lot of clients with MTHFR, which is just one piece of the puzzle.
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Referral from
April 9, 2015
Susan M. asked:I am ++ for Thyroid gene FOXE1, rs1867277, but my doctor says my thyroid is fine. Does anyone know how this SNP affects the thyroid?Elisha D. replied:You can also have w consultation Sterling Hill from MTHFR.net. They have a FB page too. She can go over it with you. You can also try finding an alternative doctor in your area, who works w methylation.
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Referral from
April 7, 2015
Penny M. asked:Is there a list of doctor s for pediatric mthfr specialist or does it matter if they r pedisMarcia H. replied:There is a doctors list at MTHFR.net. Dr. Andrew Rostenberg at BeyondMTHFR.net. Others who are connected to the Facebook groups.Michelle W. replied:My pediatrician is screening both my boys now. She said when results come back she will refer to a hematologist. But my experience with blood Drs is they didnt know what MTHFR was!!
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Referral from
March 10, 2015
Moira M. asked:So I was just diagnosed with compound heterozygous MTHFR. What's next? My primary recommended a fasting homocysteine level and then starting folic acid. I have read so much conflicting info and honestly much of it is not medical or scholarly. Should I do 23andme? I would like to see someone who is a specialist but I can't afford to pay out of pocket and don't even know where to begin to look. So basically what did you all do when first diagnosed?Anne C. replied:Check out MTHFR.net (Dr. Lynch) - but don't use foLIC acid, make sure it's foLATE or foLINIC acid. And start tiny, build slowly, and if you feel Super Amazing, stop and slow it down (you go up and then over and it's really hard getting back) Dr. AnneSonni M. replied:Started reading anything and everything I can on MTHFR and its treatments. Then decided what supplement to start first. And went low & slow.Anne C. replied:but be sure they actually know about all the aspects of SNPs - I'm beginning to get patients who were seen by doctors who thought they knew about MTHFR - what they knew was enough to know that it existed and to test for it, but nothing about how to manage the complexities clinically. There are also beginning to be lots of tests around that promise to help doctors figure this out (because, as all of you know, this is NOT simple) and they give protocols based solely on SNPs, or give docs ways to plug in SNPs and spew out supplements. And, I'm sorry, but that really really backfires - you can't treat SNPs, you have to look at cause, symptoms, history AND SNPs for all this to really help. Most people on here have more knowledge than 90% of the doctors (MD, ND, DC or whatever) that say they know about MTHFR. Get recommendations and reviews. . .
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Referral from
March 3, 2015
Susan H. asked:Anyone done phone consultation regarding your genetic results? Who did you use and what was the price? And was it worth the $ and would you recommend to others?DrMelissa J. replied:www.mthfr.net. then go to "find a doctor" which lists skilled practitioners by location.Shannon D. replied:Ana- does he address the other mutations? Like CBS etc before MTHFR?Tim J. replied:Telling you about the SNPs is the easy part. Putting or fitting it into your clinical picture requires a knowledgeable provider/clinician. There's usually a digestive component, an infectious component, hormonal imbalances, and possibly neurotransmitters and mitochondrial issues. If anyone is interested in a lot of free information, here's some. http://www.mamavation.com/2013/08/dna-methylation-are-your-genes-turned-on.html http://www.blogtalkradio.com/undergroundwellness/2012/03/30/neuro-immune-disorders-with-dr-tim-jackson http://www.fitzeefoods.com/methyltetrahydrofolate-reductase-what-part-1/ http://robbwolf.com/2014/06/05/hack-immune-system/?utm_source=feedburner&utm_medium=email&utm_campaign=Feed%3A+RobbWolfThePaleoSolution+%28Robb+Wolf+ http://www.fitzeefoods.com/methyltetrahydrofolate-reductase-what-part-2/ http://www.superhumanradio.com/shr-923-the-linkage-between-the-methylation-pathway-and-autoimmune-disorder-autism-spectrum-disorder-and-migraines.html http://superhumanradio.com/shr-965-whats-up-with-brooks-plus-dopamine-the-reward-neurotransmitter.html http://www.superhumanradio.com/shr-990-the-blueprint-power-hour-plus-hyperbaric-oxygen-therapy.html http://www.mthfrsupport.com/resources/blog-talk-radio-show/blog-talk-radio-archives-january/ Scroll down until you see ‘MTHFR Support’s first show’ http://scdlifestyle.com/2013/09/the-role-of-epigenetics-in-gut-health/ http://www.jackkruse.com/watch/community-wide-hormones-webinar-with-dr-tim-jacksonkdkocqqozdeov9382ie/ http://www.jackkruse.com/achieving-optimal-dr-tim-jackson-healing-your-hormones/#idc-container http://functionmedicine.com/blog/ http://www.jackkruse.com/dr-tim-jackson-internal-stressors/ http://www.jackkruse.com/heal-your-hormones-bronze/ http://www.bengreenfieldfitness.com/2013/12/how-hormones-make-you-fat/ http://www.ameerrosic.com/can-mold-make-you-sick-the-secret-barrier-to-optimal-digestive-health/ http://healyourbody.org/optimizing-your-immune-system-part-2/ http://healyourbody.org/optimizing-your-immune-system-part-1/ http://www.blogtalkradio.com/elevateyourenergy/2014/02/18/methylation-mthfr-and-your-health-with-dr-tim-jackson http://www.betterhealthguy.com/methylation http://jackkruse.com/heal-your-hormones-bronze/?orid=199&opid=36 http://thehealthyapple.com/mitochondria/ New article on Ben Greenfield's site: "Blame the Bugs: How Stealth pathogens can make you fat, tired and brain dead" http://www.bengreenfieldfitness.com/2014/06/blame-bugs-stealth-pathogens-making-fat-tired-brain-dead/ http://paleomovement.com/microbes-metals-methylation/ http://michealhilton.com/how-stealth-infections-could-be-impacting-neurotransmitters-and-interfere-with-your-hormones-2/ http://www.paleocare.com/paleocare-podcast-27-mthfr-dr-tim-jackson/ http://hypergpregnancy.com/methylation-matters-can-improve/ http://www.bengreenfieldfitness.com/2015/02/hidden-truth-behind-toxins-detoxification-detox-diets/
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Referral from
February 15, 2015
Stacy V. asked:I just picked up my lab results from my Dr and I'm heterozygous C677T. I only found out because of recurring pregnancy loss. Any ideas on where to go from here? Could this be the reasoning behind my fatigue and headaches? I have no idea what to do from here. Any help is appreciated!Stephanie F. replied:MTHFR.netCarolyn C. replied:I have also a high homocysteine level that is part MTHFR. This what I been prescribed by Hematologist. It is correct!!
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Referral from
February 9, 2015
Lisa M. asked:Is there any database of doctors that specialize in MTHFR for children? Thank you!Marcia H. replied:There is a list of doctors at MTHFR.net. Not especially for children, but they probably see children.Cindy B. replied:I have one that is really working with us in Dallas. You could try doctors that treat the health issues associated with autism (like DAN doctors) but a word of warning: not all of them are good. That being said, they know a lot about Mthfr generally because so many with autism have the mutation.Marcia H. replied:I would do a search for naturopaths, functional medicine doctors, and integrative medicine doctors in your area. But not all of them know much about MTHFR. It's still new.Nicole W. replied:MTHFR is not a disease or a diagnosis. Even DAN/MAPS, functional medicine and integrative doctors are not neccesarily trained
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Referral from
February 8, 2015
Wendy G. asked:Hello. Can anyone recommend a doctor with knowledge in MTHFR in Southern California?Marcia H. replied:There is a lost of doctors at MTHFR.netAU G. replied:Dr. Shannyn Fowl, ND in San Diego. She seems to be one of the MTHFR experts in Southern Cali.
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Referral from
February 3, 2015
Marcie J. asked:I just heard the 123andMe site doesn't do the MTHFR testing anymore! Is there another testing service here in the U.S.?Holly P. replied:Jennifer Baldwin: I only meant it's hard to search the raw data and interpret yourself! :) It's SO easy to use genetic genie, mthfr.net or livewello etc! :)Jen E. replied:You can easily upload it to LiveWello for about $30 and get a listing which clearly shows the common MTHFR defects and whether the person doesn't have them (green) are heterozygous (yellow) or homozygous (red)Susan H. replied:I ran mine through Genetic Genie and did get the basic MTHFR mutations but then paid 37$ to run my 23 and me info through nutrahacker and got lots more info than Genetic Genie. I think it screens for more mutations and also said which supplements are good to take and which to avoid for each mutation. Well worth it to me. And it was not hard. Nutrahacker showed several mutations that said DON'T take Methyl B12 because of these so now we are doing Hydroxy B12 instead.Katherine I. replied:You really should get the 23 and me test done and not just MTHFR because you may have other mutations....its important to know the whole picture.Katherine I. replied:You need to find a functional doctor or holistic doctor or biochemist to interpret and explain it and tell you what to do. I still don't totally understand, even with explanations....but currently just working on the MTHFR portion by taking methyl folate and niacin...very slow process...trying to be patient.Trish F. replied:If you just want to test your MTHFR, you can have that done with a simple lab test through Labcorp covered through insurance. That is what my son and I did, but when it came up homozygous for MTHFR we then did 23 andme.Susan H. replied:He have BCBS insurance and they would not cover our MTHFR testing. Called it experimental or something.Trish F. replied:Susan Rossing Harrison I have BCBS of NJ and they covered it. I had mine done with a functional physician and it came back positive with recommendation that other family members should be tested. My son just took my results to his GP who knew nothing about it but ordered the test. He went to Labcorp and we didn't pay a thing. I was going to post a copy here but I can't figure how to convert the pdf to a jpg. I would check again with you doc or BCBS. Under test ordered it says MTHFR; Venipuncture. No fasting.Mark J. replied:MilleniumPGT does the MTHFR testing, and COMT, for drug sensitivities mainly, but the data is still good. And I wonder who is telling them to stop testing for this? Somebody blow the whistle on these idiotsTrish F. replied:You know I had read somewhere, (here?) that some people were getting responses from docs something to the effect of that now they were finding that MTHFR is worthless. So maybe they are doing some kind of sweep to get the relevance of it wiped out. It wouldn't surprise me as I am convinced that the establishment doesn't want us to get well and become healthy.
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Referral from
January 21, 2015
Michelle L. asked:Hello all! I just recieved my 23 & Me results. Can anyone recommend a dr in AZ who can interpret these and impliment a protocol? Anywhere in AZ is fine. A million thanks in advance!Christine P. replied:MTHFR.net - Dr. Lynch I like Sterlings App (MTHFRsupport) for running raw data.
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Referral from
January 14, 2015
Kelly G. asked:My doc is trying to give methyl B12 for a double C667T. She literally just read what the MTHFR was a week ago and said everyone with MTHFR needs Methyl B12 and methyl folate. She is trying, but really needs some info. Seeing as neither of these have been tolerated well in the past and bring on high anxiety, I know I have seen info on here about how some double C677T can't tolerate MB12 or methyl folate. I tried looking in the files, is there a link someone could give me or something I can print out for my doc about this??? ThanksMarcia H. replied:I think it depends on the person. You can take methylfolate or folinic acid or possibly TMG, and for B12 you can take methylcobalamin or adenysylcobalamin or hydroxycobalamin. There are differences between them all . It also matters what other B's you take. I like MTHFR.net for advice. I think it's good to experiment. Try different things. For myself, I take methyls (including TMG and B2 and pantothenic acid and biotin and choline and P5P). I feel like I need all of them to make my methylation work right.Tonia F. replied:My son is double C677T and my daughter and I are both compound hetero MTHFR C677T/A1298C. This is new for them and I have them both on the same sublingual B12/Methyl Folate Blend. My son say he feels better with out it.Theresa T. replied:Has anybody looked at your other snps? There are others that may need treated before MTHFR. Some say that should be the last thing to address. Personally, I would not feel comfortable getting (or paying) somebody for advice on such a complex topic that had one week of experience in this arena.
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Referral from
December 19, 2014
Lori L. asked:Is there anyone out there who can't metabolize pain meds like oxycodone and morphine? What alternative are there post surgery?Stephanie F. replied:there are SEVERAL meds certain types of MTHFR people should NOT be given. The symptoms have quite a range but in short it's because they shut down Vite B and nutrient absorption causing methylation issues and toxicity overload. You WILL have to do the research for yourself and be your own advocates because MOST medical staff are unaware of MTHFR, or just don't recall this as part of their medical training. MTHFR.netDanielle M. replied:I haven't been tested yet (soon! Hopefully 2015 is the year!), but I can't handle any pain meds really. Oxy, Hydrocodone, and morphine are all no-nos for me. I've had some luck with Tramadol for pain relief, but it has lots of not so pleasant side affects. I also don't know what implications it has for mthfr.Danielle M. replied:Oh wow! I have the exact opposite happen. 1/4 pill knocks me down. What kind of surgery? Wondering if maybe there are other options other than meds. Turmeric lowers inflammation and helps my daily pain. However, some have said it isn't great for MTHFR if you have certain things going on. It's a methyl donor, maybe?Melanie S. replied:I don't know if it's mthfr related but pain meds don't work well on me either. I had a peak troph test done and they said I metabolize in 4 hours what a normal person does in 24 hours. (But yet I'm hypothyroid so my metabolism it's self is slow.....just how my body uses pain meds is fast). For me the better pain killer is a benzodizapine like valium. But it will knock me out! So not sure you could work like that. Also I have to say methadone was the best pain killer I ever had for my back issues. It took my pain away but I could function still....however due to the rapid metabolizing I had to take a low dose more often.Melanie S. replied:percocet is oxycodone with tylenol. big no no for mthfr.
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October 18, 2014
Jessica N. asked:Could someone link me to an MTHFR group that is closed, please?Vonda H. replied:http://mthfr.net/
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June 8, 2014
Jamie R. asked:Anyone know a good place to find out what kind of diet people with the A1298 MTHFR mutation should be eating and what to avoid? I know avoiding toxins is important but that seems almost impossible, which toxins are the most important to avoid?Susan D. replied:mthfr.net is a good site. nutrahacker.com and yasko's site.Darlena K. replied:Ok, that explains the twitching. Huge Lyme symptom. I also have Lyme, gut issues and MTHFR. I figured out the best way to work on everything in order was the very clean Paleo type diet, shots, etc for MTHFR and Lyme treatment will be easier when the ...See MoreDarlena K. replied:Jamie, just to let you know that the worst problem with the cookies and donuts isn't the sugar, gluton or even the bad oils....for us, if you live in the US, its the Folic acid, which by law, is included in all enriched wheat products. If you can, give the stuff you bought to someone without MTHFR. You will have too much to deal with eating this weeks stash. Just a thought!
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February 23, 2014
April R. asked:How would I find a top MTHFR specialized person in southern Indiana or surrounding states? Someone who could educate me on this and provide recommendations.Shannon J. replied:Mthfr.net mthfrsupportp.comAre the best resources besides everyone I this group
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Referral from
February 23, 2014
Shannon J. asked:Does anyone else here have hemiplegic migraines? Jenny Jennings FoerstKristen C. replied:Where can I get Amy's protocol? I see people talking about it? I have only been on here a few mths is it on the mthfr.net site?? I have thyroid issues also. I have a t hryroid goiter.. my nuero has never mentioned the type of migraine besides chronic ...See MoreKris R. replied:I have a daily headache that moves around, doc says they are all probably migraines. I also get them with auras and stroke like symptoms sometimes. I am also new to this. The only snp i have been tested for is mthfr, i am homo c677 t. Methylfolate has l...See MoreKristen C. replied:I am home c6771 I have not done the 23 andme yet so I dont know much else besides the mthfr from my blood work. I have without aura. I too also get the vertigo ones as well. My triggers are hormones , my neck and this awful barometric pressure change...See More
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February 5, 2014
Martina M. asked:I just checked a specialist in my area,is it normal that they charge $ 275 an hour ?Susan N. replied:Labyrinth Ladae go to mthfr.net and look for find a doctorRebecca D. replied:I don't mind paying for a specialist if they REALLY know what they are doing. I took my son too an specialist autism doctor and he missed things… and subsequently had me buy supplements that my son couldn't take. My knowledge in some areas already exceeded his. MTHFR is just one small part of our puzzle so I need someone who really gets the big picture.Susan N. replied:warning - just because someone has attended Lynch's course does not make them a MTHFR specialistTeresa S. replied:Vonda Ponder right here on mthfr group.
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January 8, 2014
Sophia T. asked:I am brand new to the world of MTHFR. Can someone please recommend a good place to start reading up on all this? I need things explained in plain English! a "MTHFR for Dummies" would be great ;)
Amy L. replied:MTHFR.net
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December 2, 2013
Raising K. asked:Advice Please! Repost from Anonymous I have had recurrent miscarriages and feel like I have exhausted all of my options. Have gone to see a RE-- all of my tests have come back normal. Have tried acupuncture, gone to a chiropractor, done cleanses. Nothing has changed the outcome of my pregnancies. All have been first trimester losses. Am hoping that someone can come up with a natural remedy of sorts... Am open to all natural suggestions at this point. Thanks so much.Michelle J. replied:MTHFR.netAlicia B. replied:You should definitely get tested for MTHFR gene. Google it.Kristen M. replied:If you haven't been tested for MTHFR, get tested! If you have it, it is an easy fix. Tons of B vit and fish oil.
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September 17, 2013
Rory J. asked:Can anyone recommend a good physician or naturopath in South Australia who knows mthfr?
Hazel I. replied:There was someone mentioned in SA in one of the comments on MTHFR.net....if I chance upon it again will post here
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Referral from
September 10, 2013
Insight N. asked:If anyone has a great doctor/naturopath/nutritionist/practitioner that is savvy with methylation can they please share details here. Can be anywhere in the world. I would love for those looking for practitioners to have some options and unfortunately I don't know that many who aren't booked out. Thanks lovely folksKate P. replied:Yes, Dr Ben Lynch http://mthfr.net ... a whooole lotta methylation - all he does (I would also recommend as praccies Lara Briden@Lara Briden's Healthy Hormone Blog (Sydney and Canada) and Jan Ashton-Ross@The Jan Plan (Sydney) MTHFR Mutation | MTHFR Gene Mutation | What is MTHFR? - MTHFR.net mthfr.net MTHFR.net is the leading MTHFR mutation resource. Learn about MTHFR gene mutations, how to live with MTHFR mutations and simply - what is MTHFR?
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June 14, 2013
Martha P. asked:Hi all, I'm new to the group and just starting research on EDS. I was wondering if anyone in this group has been tested for MTHFR? I understand that EDS often is related to MTHFR. Can anyone suggest good sites to learn more about EDS? I have one son with terrible Reynaud's, my other son suffers from Chronic Eczema, Allergies, Asthma, Sever's Disease (Heels) and was born with a lower lumbar dermal sinus tract...and hypermobility. Both boys have very low stomach acid too. Would also welcome any doctor names in the Atlanta, GA or North GA area....thank you very much!Martha P. replied:We just ordered the 23 and Me genetic tests for everyone in my family.....$99 - MTHFR is one of the 40+ medical genetic findings. Read the articles on MTHFR.net...methylation of folic acid to proper folate in the body is one of the biggest issues...my husband and I and both my boys have one or more genetic mutations of MTHFR...I think both boys and possibly myself have EDS.Tracy W. replied:I haven't been tested for mthfr but I'm planning on talking to my doctor about it. I feel like it's another piece of my puzzle.
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October 21, 2012
Sherrie P. asked:Suffering from debilitating headaches. I have always had a lot of headaches but its getting worse. I have approximately 4 a week. I need suggestions to take to my doctor he is clueless to MthfrGinny D. replied:From MTHFR.net Common undesirable side effects of methylfolate must be identified. headache migraine rashes irritability anxiety joint pain muscle pain insomnia depression If side effects occur, then the amount of methylfolate you are taking needs to be taken under consideration and likely reduced. Talk with your physician before altering any protocol or supplement/pharmaceutical. Many times one is not yet ready to take methylfolate. There are other steps that must be taken prior to supplementing with methylfolate if these side effects occur. If side effects occur, taking Niacin helps bind the excessive methyl groups which are likely causing the issue. Consider taking 100 mg or 1/5 th tablet of Niacin if these symptoms occur. It is a good idea to have a bottle of Niacin on hand in case these symptoms occur from taking too much methylfolate. Be sure to swallow the 1/5 th tablet of niacin – not chew or place sublingually.
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April 6, 2016
Meredith C. asked:I was about to order a 23andme test until I read it'll take 12 weeks to get my results back. Any other suggestions on where to get tested that would be faster?Stephanie F. replied:Dr Ben Lynch's site offers some options under his reference tabs. I've found 23&me to be the best and most comprehensive. Then it's also easy to load to receive your medical data reports & definitions. They give an estimated time frame but have also found most receive their data more quickly than their estimate http://mthfr.net/
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Referral from
September 6, 2015
Rodger H. asked:Can anyone recommend a great Dr who is well versed in gene mutations in San Diego or close by? Please help, thank you.Stephanie F. replied:There is a link to run a search for your area...@MTHFR.net
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Referral from
July 25, 2015
Missie E. asked:Does anyone know of a Dr in Knoxville Tennessee that knows about mthfr because I haven't been able to find one that can helpStephanie F. replied:Dr Ben Lynch has a link on his site to look up physicians in your area... MTHFR.net
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Referral from
March 10, 2015
Eliza P. asked:Can anyone recommend a physician/practitioner in nyc or westchester that can help me with this? When I look on the website at the provider guide they list only 2 who are quite far from me. Thanks!Stephanie F. replied:This site has links to information and physicians MTHFR.net
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Referral from
February 12, 2015
Sherry S. asked:Does anyone have a full list of the companies that can convert 23andMe data? THX!Stephanie F. replied:There are links on. MTHFR.net
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Referral from
February 17, 2016
Christina B. asked:(Edited) Recommended print-outs to bring to Dr explaining MTHFR? (I want to get homocysteine, B12, ect checked. Dr not familiar with MTHFR.) Thank you!Marcia H. replied:MTHFR.net has information.
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November 25, 2015
Rebecca H. asked:Ok, so I am trying to get pregnant, had a very early miscarriage last month and my midwife and Ginger recommended I take low dose, 81 mg asprin...I'm already on a bunch of herbs, eating mainly organically, and see an acupuncturist. Where is the best place to get the asprin?! The stuff at walgreens was FULL of junk...I got the lesser of two evils, but I was wondering if there is a better place to go?Marcia H. replied:You could join the MTHFR and Pregnancy group. And check out the information at MTHFR.net about pregnancy.
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Referral from
November 12, 2015
Melissa M. asked:I need everyones help ASAP. If you know of a good natural doctor who does phone or skyp will you please share with me. I know this is a scary question to ask with all that is going on in the news so you can pm me if you want. Just let me know you did that. Please I need a list of doctors I can research as soon as I can.Marcia H. replied:There are lists of doctors at MTHFR.net and SeekingHealth.org
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October 29, 2015
Tessa M. asked:Have the C677 not the A1298C. What would be a good starting place supplement wise to address this. I am need of a doctor in Dallas Fort Worth to treat this but having a difficult time finding one. ThanksMarcia H. replied:There are doctors lists at SeekingHealth.org and MTHFR.net.
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October 5, 2015
Karen B. asked:Does anyone know of a dr in the Houston area who deals with mutations?Marcia H. replied:Have you checked the lists of doctors at MTHFR.net and SeekingHealth.org?
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October 2, 2015
Karen B. asked:My son is 3 weeks old and homozygous for C677T mutation. I am looking for a recommendation for doctor or naturopath in the northern NSW / Gold Coast area experienced in dealing with MTHFR.Marcia H. replied:There are some doctors lists at MTHFR.net and SeekingHealth.org.
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August 10, 2015
Jennifer P. asked:I am mthfr c677 +/+. I am searching for recommendations for a practitioner to work with. Thank you!Marcia H. replied:MTHFR.net and SeekingHealth.org have lists
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July 4, 2015
Elizabeth B. asked:Does anyone know of a good functional medicine dr or naturopath in Baton Rouge, LA? My sister is in desperate need of a good alternative dr. She has lots of allergies, asthma, and gut issues (she's had these most of her life). She's on several meds and aren't helping/making things worse. She's finally open to trying something new!Marcia H. replied:There are doctors lists at MTHFR.net and SeekingHealth.org.
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Referral from
March 30, 2015
Leslie W. asked:I am very new a trying to absorb all this information but I have a question that I'm sure most will know the answer to: What genetic mutations does the 23&me test show? I just read a post from a member that said they were vulnerable to anesthesia. Did the 23& me test reveal this? What else would it help us understand, and where do we go to have the results analyzed? Thanks so much in advance!Marcia H. replied:MTHFR is one of the genes that affects detoxing, and so people with it are vulnerable to reactions from anesthesia, vaccinations, nitrous oxide, fluoraquinilones, toxins in the environment, etc. Dr. Lynch has good info at MTHFR.net and SeekingHealth.org.
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Referral from
March 15, 2015
Susan J. asked:Looking for a doctor to treat me for homozygous MTHFR as close as possible to Huntington, WV. I am very ill and need treatment ASAP. Please share if you know of a good one. Thank you so much!Marcia H. replied:Did you check the list of doctors on MTHFR.net? "Practitioners List"
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Referral from
February 23, 2015
Carly N. asked:I looked in the files, and on the Livewello site. I didn't find a lot of practitioners listed. Specifically the Mensah clinic, Tim Jackson, Jess Armine, and Dr. Walsch weren't listed. So my questions is, does anyone have a more comprehensive list of practitioners? Could we (I) compile one. I would love to hear some feedback.Marcia H. replied:There is one on MTHFR.net. Dr. Lynch said he is revising it so that the practitioners know more about MTHFR, I think.
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January 26, 2015
Lucía A. asked:Is there any Spanish speaking doctors that do Skype consults? I'm an administrator of a very large Latin American autism parent support group and sadly there are practically no doctors that know about polymorphisms. Even if the doctor doesn't speak Spanish but can get a hold of someone who can help translate that would be great.Marcia H. replied:There is a doctor list at MTHFR.net that might be some helpMarcia H. replied:Also, asking questions on MTHFR.net might elicit a response from Dr. Lynch.Marcia H. replied:And surely you've tried to contact Dr. Yasko about this? With her autism and MTHFR knowledge she must know people who speak Spanish.
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January 13, 2015
Debbie R. asked:Have a question, just found out i have homo c677 and a1298. I have low b12, vit d and ferritin. I have issues tolerating thyroid meds. I have hasimotos/hypo thyroid. What does treatment entail. My dr had no recommendationMarcia H. replied:Dr. Lynch's information at MTHFR.net and SeekingHealth.org has helped me a lot. His podcasts, videos. There's information about compound MTHFR on his websites. He also has a doctor's list on MTHFR.net
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Referral from
December 13, 2014
Alison G. asked:I am homozygous C677T and have known for a number of years. I've treated myself mostly with the help of testing but I'm now, at 50, butting up against the mainstream medical establishment that want to put me on statins and thyroid medication. As you all know it is exhausting dealing with doctors who on the one hand insist I take these medications and on the other blatantly admit they have no idea what MTHFR is. I am now looking for a practitioner in the San Francisco Bay Area who is knowledgeable about MTHFR and can dig in to help me with my high cholesterol and high thyroid without the aforementioned medications. Thank you for any referrals. This is a great group!Marcia H. replied:There are doctor lists at MTHFR.net and MTHFRsupport (.com, I guess?) There are also lists of functional medicine doctors. Some doctors do phone consults (like Andrew Rostenberg, I might try him some day).
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November 6, 2014
Vangy B. asked:any one understand this, my brain doesn't process this kind of info very well so making sence of what it means to me is very difficult, maybe there is someone out there with same results that understand it and can make recommendations?Marcia H. replied:Did you read the info at MTHFR.net? There are protocols for MTHFR 677 t and 1298 on the website. Dr. Lynch's podcasts and videos are great. Don't worry, you'll learn if you search online. You can even search for individual SNP's online and get information. And you know what +/+ and +/- mean already, right?
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October 21, 2014
Alicia W. asked:Does anyone have that link of mthfr doctors?Marcia H. replied:There are lists at MTHFR.net (a link to the website comes up when I mention the website) and there's one at mthfrsupport.com I think
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August 3, 2015
Lisa D. asked:Hi all, I am newly diagnosed but I've been battling with symptoms for a long time. I've been following your posts and I'm learning A LOT. I have so many questions but I don't want to repeat things that you all may have discussed before I joined the group. I'm not even sure where to begin. I'm overwhelmed. I need a "Lyme for beginners" coach. Any suggestions on reliable sites or are there support groups around?Courtney T. replied:MTHFR.netCourtney T. replied:First off, there are local support groups in some areas. Often, you can look on fb or Google for your area. Second, this a brief list to get you started. Lyme Basics 1) Check fx of hypothalamus, liver, kidneys, pituitary, thyroid (free T3, Free T4 and TSH), adrenals. 2) Decrease toxin exposure (including mold) in all things and increase detox 3) Watch your diet including sugars, folic acid, etc. 4) Test/treat for methylation issues. MTHFR. 5) Treat underlying viruses 6) Build immune system and avoid Steroids 7) Check to make sure vitamins are at good level, especially magnesium, iron, zinc, b12. 8) Make sure you are treating co infections that are NOT bacteria (like Babesia) with something other than just antibiotics. Almost all, if not all, lyme comes with do infections. 9) eliminate all parasites. 9) lyme takes three forms: spirochete, cyst, and biofilm and the same treatments don't work on all of these 10) All lyme specialists are not created equal. If they cannot address these things, find a new specialist. 11) There is no single thing that works. If someone claims this, run for the hills. Improved immune system does not mean the lyme and co infections are gone. 12) make sure your doctor follows ILADS not IDSA/CDC. 13) Do your research! Form a network of experienced sounding boards. 14) Manage stress through meditation, yoga, or some other healthy activity. 15) Everybody needs to know that treatment must be highly individualized based on your body and its infections. There are multiple strains of LD and co's. Seek expert medical treatment and, yes, you will likely have to drive to a different state.Courtney T. replied:MTHFR is a genetic anomaly that is present in good majority of the population and is exceptionally prevalent amongst chronic Lymies. In brief, the genetic mutations prevent our bodies from managing vitamins, minerals, toxins, etc in an effective way. IF you have it, the lyme battle is more difficult and remission can be prevented. You must first address this if you want to find long term remission, IMO. Remember, if you aren't processing things well in your body, it can feed the lyme. What's the point of treating it while your are nurturing it? Plus, toxin load will become very heavy when killing those buggers, but if your body can't release the toxins well, there is more brain, kidney, adrenal, liver damage that can happen.
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Referral from
May 28, 2015
Christine N. asked:Anyone use a Dr in South FL?Michelle W. replied:Check mthfr.net He lists Drs who specialize in this by state.
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Referral from
May 17, 2015
Heather L. asked:I need health care provider recommendations in the Seattle area, preferably north Seattle. I have A1298C Hetero. Unfortunately, my insurance won't let me see naturopathic doctors. Thank you for your help!Kendra C. replied:Mthfr.net has a list by stateKendra C. replied:The ones on mthfr.net were recommended by people who have seen them. Not a crapshootKendra C. replied:Also you can ask in the MTHFR kids group. They might have recommended Dr's there also
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Referral from
March 15, 2015
Raquel B. asked:I am new to this. what is the best way to learn how to support one's health better? I would love to go see Doctor Savage, but it is about 8 hours from me. Does anybody know about a great doc who knows how to support people with HLA and Methyl mutations in the Washignton DC metro area?? Is there a book I could read and proceed to treat myself?Mark J. replied:Good place to get information: http://mthfr.net/
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Referral from
December 2, 2014
Emma B. asked:Does anyone know (or know of) a mthfr knowledgeable obgyn in northern california?Jennifer S. replied:have you checked mthfr.net ?Jennifer S. replied:not that those are exclusive MTHFR aware providers, but it might be a start - it means that they are invested enough to have paid for Dr Lynch's courses. oddballs like me (i'm neither an obgyn nor am i in CA) don't pay but figure it out on our own and so don't get listed.
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