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PDSA
55 recommendations and reviews from 42 people
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Referral from
October 5, 2015
Marilyn P. asked:I am wondering who would be considered the leading expert(s) in the world for ITP. I find a lot of information on hematologists and really great hematologists around the world, but I'm wondering if there are hematologists who truly specialize exclusively (or nearly) in ITP. Opinions?Clemens G. replied:You need to go and get information on the PDSA.org website. It provides a lot of information provided by some of the best informed and knowledgeable doctors. If you ca order minutes from the ITP Conferences. They provide information and discussions from some of the Doctors. And If you do not understand how ITP works there is a good presentation given on how platelet destruction occurs.Audrey C. replied:Dr Tarentino (IL) Dr Bussel (NY) Dr Arnold (Canada) our dr (Dr Hays-she is basically retired & is friends w/dr Bussel -who says, if she says it, believe it, she knows). Also PDSA has a great list.
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Referral from
September 12, 2015
Caroline H. asked:Hi does anyone know where I could get a bracelet for my daughter to wear that informs paramedics that she has itp in case it is ever needed?Chris M. replied:www.pdsa.org
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Referral from
August 29, 2015
Destiny P. asked:Anyone know where i can get support gear? Pins... Bracelets... Etc.Crystal V. replied:PDSA.orgTrish B. replied:Pdsa.org
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Referral from
August 26, 2014
Jia E. asked:Does anyone know the name of the different organizations that help ITP research? Thank you in advance! Wish you everyone platelets up!Jason F. replied:PDSA.orgCharity H. replied:PDSA is the primary one in the US.AnnMarie S. replied:Dr Bussel at NY Presbyterian is trying to fund two different research initiatives. As I understand it, PDSA does not conduct reaserch, but compiles info from research that had been done.
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Referral from
August 20, 2014
Simone M. asked:im wondering if anyone has tried taking vitamins or supplements and which ones may not be good for blood counts?Katie R. replied:Pdsa.org has some articles on what To eat and what Not to eat. Avoid antioxidants, encourage dark leafy greens!
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Referral from
August 13, 2014
Jaina M. asked:Does anyone know where to look at getting an ITP bracelet on line in the US? All I see are the ones available in the UK? Thanks! :-)Amy F. replied:Pdsa.orgJeri P. replied:www.pdsa.org
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Referral from
June 20, 2014
Andrew R. asked:""""""""""""""""""""HELP NEEDED HELP NEEDED """""""""""""""""""""" do anyone know of any place or way of getting medical help for a dog !!!! a friend has a dog who somone has posioned meat and feed it to him ,he has had the runs for 6 days now and getting worse ,, the family has ran out of mony after 3 trips to vets at cost of £388 the dog is old and they cant get him insured ,,ANY IDEAS WHAT ,WHO, OR WERE TO TRY , ANY INFO HELP OR ADVICE WOULD BE GREAT ,,, their next pay day is end of month , OR ANYONE HAS EASY CURE ,THANKS""""""""""""""""""""""""""""""""""""""""""""""""""""""Suzy S. replied:PDSA.org.uk is a Vet charityBeckii J. replied:Vets will do payment plan :) or u can try pdsa xxxSue G. replied:i use fenwold vets in mabo they do do a payment plan if you explain also if on benefits can get help from pdsa form from the vetKerry M. replied:PDSA ask for a donation of what ever you can afford so that would be ur best choice. I use Frank Coleman in orby n their great
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Referral from
June 13, 2014
Angela D. asked:Just asking for some advice. It looks like my gecko has a broken leg. I can't afford to take her to the vets. Does anyone know if there is any charities that can help?Shelley E. replied:This is our closest PDSA I think? Peoples Dispensary for Sick Animals Croydon Veterinary Centre Hurst Road Croydon Surrey, CR0 1JT Tel: 0208 686 3972Laura S. replied:PDSA - For Pets in Need of Vets might be able to help, but maybe contact Surrey Reptile and Amphibian Society - SRAS for advice.
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Referral from
March 10, 2014
Brenda H. asked:Can someone elaborate on their experiences with Rituximab? My daughter, who is 17 now and has had ITP since 2008, had a hemmoragic stroke in Aug. '13, spleenectomy in Oct. '13 and now….still has low platelets. Hemoc's want to try rituximab next.Winnifred T. replied:Rituximab or Rituxan is designed to kill off B-cells. The link is to the PDSA page on Rituxan.http://www.pdsa.org/.../conventional/b-cell-depletion.html
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Referral from
November 11, 2013
Leslie G. asked:Does anyone know if there is any link to depression and ITP ? (not including the meds)Jan B. replied:www.pdsa.orgJan B. replied:PDSA newsletters have articles about mood swings and depression and the part steriods play. If you go to the web site and do a search you'll find information.Linda E. replied:This came from PDSA site:Does ITP cause depression and fatigue? Many people with ITP report being depressed. This might be because the “feel good” neurotransmitter serotonin is carried by the platelets in the blood and delivered to the brain. Anythin...See More
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Referral from
September 27, 2013
Kayleigh C. asked:Anyone know where i can get the ITP purple bracelet in the UK?Sandy M. replied:Pdsa.orgRachel C. replied:PDSA uk or Anthony Heard
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Referral from
August 19, 2013
Lisa G. asked:Can anyone recommend a vets in Croydon please? Tiggs has a cut across the surface of his eye...
Peter W. replied:7 Hurst Rd Croydon CR0 1JT 020 8686 3972
Donnamarie B. replied:Oh no bless him I know you don't have a pdsa too far from you babe look on google xx
Kate W. replied:There's a PDSA in South Croydon Lisa. Peter takes Tilly there. xxx
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Referral from
February 28, 2012
Joan Y. asked:Phoenix Area ITP Support Group Meeting March 10 Please join us Date: Saturday March 10, 2012 Time: 1:00 PM to 3:00 PM Place: Freedom and the Seed, 170 S. Ash Ave. Tempe, AZ 85281 (At Rio Salado Parkway, in a group of small homes across the parking lot from Mercado restaurant. Near the ASU campus, shops and restaurants of Mill Ave.) Agenda: Sharon Terry, a Reiki practitioner/teacher from Glendale, will be giving a short talk and demo of Reiki, a gentle form of energy therapy that some people with ITP have found to be helpful. There will also be time to get to know each other, share stories, and exchange information. Please RSVP Facilitator: Joan Young (PDSA founder, now living in Sedona)Jeff C. replied:Joan - you could post it here too if you want: http://pdsa.org/.../cale.../month.calendar/2012/03/27/-.html
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Referral from
February 8, 2012
Rhonda S. asked:Does anyone know if us that suffer from ITP have an awareness ribbon made for our disorderJackie F. replied:yes you can order them on the pdsa.org website... they are purple .. i bought a few pins and love themSarah A. replied:pdsa.orgBrandy D. replied:Yes we do, and a bracelet that says " got platlets" Both can be found on the pdsa website store.The pin is maroon with purple platlets on itStephanie S. replied:I would also I looked on the pdsa website once and saw itPauline D. replied:I have the pdsa bracelet. Bought it right after my daughter was diagnosed and I never take it off. We actually bought 20 and gave them out to some family members as well as two others who had ITP in the same school. It's as durable as those Livestrong bracelets that everyone used to wear.
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Referral from
January 30, 2012
Amy L. asked:I would love to go to a ITP conference sometime. Does anybody know where to look for next conference??Dave N. replied:info on it is here: http://pdsa.org/.../annual.../itp-conference-2012.htmlLavinia B. replied:I have been to three PDSA conference. Won't get to go to this years because it's too far away and would be far too expensive for me. The conferences are wonderful and I learned a great deal at them though.Caroline H. replied:pdsa.org will probably have info on it. Last year it was in Boston, so I am betting it is somewhere west of that.
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Referral from
January 19, 2012
Suzie V. asked:Does anyone know of a ITP Doctor in the Southeastern part of Michigan?Caroline H. replied:That should be pdsa.org!!! If you click it above, you'll get PRinceton Day School !Nedra S. replied:Judith Anderson With Wayne State Univ. I was given her name from one of the PDSA Drs. good luck!!! I am on the west side of the state and have traveled down to Periora IL. there is no one here :(
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Referral from
July 16, 2011
Ilknur A. asked:Hello from Cyprus. My sister (15 yrs old) has ITP for a month..So we are new to ITP.. Do you know is there any diet an ITP person should follow?Porcher S. replied:Yes, I agree with both Liz Federico and Amelia O'Neill-Petre. The website is very help and full of information. There are also good groups to join to post questions: www.pdsa.org
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Referral from
March 30, 2016
Maria L. asked:Hello could you please tell me where my closest pdsa vets is, i live in Wrexham thank youPDSA p. replied:Hi Maria, to see if you are eligible for PDSA help, and what services are available in your area just visit pdsa.org.uk/vet-services/vet-care or call 0800 731 2502. Best wishes, Amy at PDSA
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Referral from
January 19, 2016
Sharon W. asked:Can anyone help or advise me what to do, I have a beautiful 6 month old cavalier King Charles spaniel who is extremely ill. My breeder sold her to me & I signed contract saying she was healthy but when I got her she had little cold. My insurance won't pay up cos it's a pre existing problem b4 I took out insurance on her. Pdsa won't pay cos I'm not on benefits. She has kennel cough that's gone on her chest & caused pneumonia. My vets Bill is over £200 now & they say it could cost £1000 + for tests , antibiotics , X-rays etc. She's already had 4 different antibiotics which r not working. We have only had her 3 months but my kids r devastated at the thort of having her put down. Please can anyone advise me what to do cos she's so beautiful , so young, but I don't have the money for the vets bills.PDSA p. replied:Hi Sharon, thanks for getting in touch with PDSA and I'm sorry to hear that your dog is sick. PDSA can offer vet care for the pets of owners who receive certain benefits. If you receive housing benefit or council tax benefit then we may be able to help with your vet costs. To see if you are eligible for PDSA help, and what services are available in your area just visit pdsa.org.uk/vet-services/vet-care or call 0800 731 2502. Best wishes, Amy at PDSA
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Referral from
November 9, 2015
Roni S. asked:i have tried all night to get some help or advice for my daughters 4 month old puppy who has a broken leg and the vet she took it to wouldn't even look at her without some payment up front and all she has giving her is metacalm this puppy needs to see a vet and my daughter can't afford to pay what there asking for can anyone advise me what i can doPDSA p. replied:Hi Roni, thanks for getting in touch with PDSA and I'm sorry to hear that your daughter's dog is sick. PDSA can offer vet care for the pets of owners who receive certain benefits. If you receive housing benefit or council tax benefit then we may be able to help with your vet costs. To see if you are eligible for PDSA help, and what services are available in your area just visit pdsa.org.uk/vet-services/vet-care or call 0800 731 2502. Best wishes, Amy at PDSA
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Referral from
August 25, 2014
Misty R. asked:Iv had itp for 2yrs now n the last yr every wk my counts been low n all over, n on sep 26th every female employee i work wit at neighood kitchen in pulaski will b putting a purple streak in there hair, n males wearing a purple ribbon for me n ever body els wit itp there great, they allso asked if they did a wak or fundraiser where would they send the money any body know who or where id contact?Tammi C. replied:Yes I think you can. They have lots of free literature. It's PDSA.orgTammi C. replied:PDSA
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Referral from
May 4, 2014
Serenity H. asked:Has anyone tried a gluten free diet? Did it have any affects on counts?Anna N. replied:Serenity Wilkinson Hellinger, also visit http://www.pdsa.orgAnna N. replied:On PDSA.org, there are resources, and studies. It's an excellent starting place! There's a list also in one of the resources about what things to avoid, things to watch (foods, etc.). Hope this helps. :)
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Referral from
March 5, 2014
Lauren A. asked:I've asked this before but can't seem to find the replies. We want to switch our son's hemo to someone at Dartmouth Hitchcock in NH. He is 11 years old and has had ITP since he was 5. Does anyone local have a hemo they would recommend there? Thanks!!
Jan B. replied:Also try www.pdsa.org
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Referral from
October 5, 2013
Chrystine K. asked:globalrph.com is a good website to look up if certain medicines will cause thrombocytopenia. Thought I would share I know sometimes it's hard to know.Jan B. replied:PDSA also has a list... at www.pdsa.org
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Referral from
June 9, 2013
Amy L. asked:I am moving to Westchester County, NY - near White Plains. Can anyone recommend a good hematologist in the area?
Jan B. replied:PDSA can also assist you. www.pdsa.org
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Referral from
April 7, 2012
Princess H. asked:dose anyone know where exactly itp live or stays ?Jan B. replied:Do some homework... check out www.pdsa.org to learn more about ITP. :)
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Referral from
November 12, 2013
Scott-Denise B. asked:My doc wants to try Danazol. Anyone familiar with it?Joan Y. replied:Since it is a type of testosterone you won't have the problems with growing facial hair and other masculine features that plague women on this drug. See. http://www.pdsa.org/.../conven.../modified-testosterone.html
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Referral from
May 29, 2012
Camie S. asked:I'm starting a PDSA support group on 6-2 @ 3pm-3:45pm in Fairmont WV. If anyone can make it, they're more than welcome. I know there are atleast 2 other ITPers here because I met them already. I really hope I'm not the only one to show up.Joan Y. replied:Susil...maybe try ayurveda. I know the herbs and other ayurvedic treatments help some people. See http://www.pdsa.org/.../traditional-chinese-ayurvedic.html
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Referral from
January 17, 2013
Amy K. asked:Anyone have a high monocyte level come up on their CBC along with low platelets?Bunnie S. replied:@cindy. All platelets start ou plump and typically die within 7 - 10 days getting smaller over time. With destruction most of us have more fresh young ones. The human body is remarkable at adjusting and compensating. Therefore we occasionally have folks post about giant platelets which is another condition you can lookup on www.pdsa.org.
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Referral from
February 3, 2010
Rachel B. asked:Also, anyone know where she can get some financial help with her medical bills??Bunnie S. replied:See the main web site www.pdsa.org New online booklet available from PDSA: "Health Insurance & Assistance Programs for ITP Patients: Frequently Asked Questions"
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Referral from
January 3, 2013
Elly G. asked:My son has been on prednisone since December 6, his cheeks are definitely puffy and he is quite a bit hungrier. His platelets went up to 67 then dropped to 13, then 12. Here again at Childrens hospital for another round of IVIg. After this, no more of that. January 17, he will have a bone marrow test and most likely start promacta. Any one have a 14 year old on it?Itp P. replied:There have been some clinical trial results for Promacta in children published recently. http://www.pdsa.org/.../712-platelet-e-news-december-27...
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Referral from
November 9, 2012
Grace M. asked:What about taking vitamins?does anyone have suggestions?Itp P. replied:PDSA has information on vitamins and supplements at http://www.pdsa.org/.../com.../vitamins-and-supplements.html
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