Not Crazy

6 recommendations and reviews from 2 people

• Referral from March 4, 2014
  

  Karen G. asked:

  Hello lovely peeps, just come out of hospital after having gallbladder issues, can anyone advise me if they've had theirs removed and was it ok, did it make a good difference etc, as they now want to remove mind. Thank you xxx

  

  Leanne O. replied:

  if you have gall bladder issue and ME and IBS Joyce Shaw you may want to look into EDS - causes all of those and more -see this symptom list I came across - fascinating links! http://forum.notcrazy.net/index.php?topic=9571.0

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Recommendations from Contessa C.

• Referral from November 3, 2014
  

  Shelley S. asked:

  Does this suggest EDS?

  

  Contessa C. replied:

  Stacy Kaplan Have a read through this link that is a great meme Amanda. But not everyone with EDS has hypomobile joints http://forum.notcrazy.net/index.php?topic=9571.0

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• Referral from October 31, 2014
  

  Darlena K. asked:

  Does anyone know the connection (if there is one), between MTHFR and Agoraphobia? Many people in my family have had it at one time or another. Is there a known connection?

  

  Contessa C. replied:

  If you wade thru this thread there are lots and lots of useful posts on POTS. The symptoms can be as simple as fatigue. Or some people have it so badly they can't even stand up without fainting. http://forum.notcrazy.net/index.php?topic=9571.0

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• Referral from October 31, 2014
  

  Laura M. asked:

  Does anyone know of a connection between mthfr and crps (complex regional pain syndrome)? My daughter has been diagnosed 1298 hetro and then with crps after a hamstring tear continues to cause pain. Shes been on crutches for 3 months and has been undergoing several PT sessions a week. MRIs and Nuclear Bone Scan show nothing (other than weakness from lack of use on the injured leg) Has anyone heard of there being a connection in these two or would you suggest any labs I could request her doctor to order? Dr suggests next steps be pain management and more therapy... Thanks! : )

  

  Contessa C. replied:

  yes that is classic EDS Laura McCarty - check the other symptoms here too http://forum.notcrazy.net/index.php?topic=9571.0

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• Referral from October 18, 2014
  

  Vonda H. asked:

  has anyone experience with mastocytosis and MTHFR? or any other mast cell disease?

  

  Contessa C. replied:

  Here is a fuller symptom list that has the ganglion cysts and a lot of other indicators of EDS http://forum.notcrazy.net/index.php?topic=9571.0

  

  Contessa C. replied:

  In this thread there is a link to an article by Dr Andrea Castori It lists the 17 different gene types I think for EDS. Is after that page 20 think if I find the direct link myself I will post it. The papers Castori 2012 from memoryhttp://forum.notcrazy.net/index.php?topic=9571.0

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