Does anyone know a doctor in NJ or PA (near the Jersey shore would be best but willing to travel) that knows anything about Dercums? You can respond here or PM me on this page. Thanks.
Dawn J. replied:
Dr. Compton Phone Number 1 570 271 8050 (St.) PENNSYLVANIA (note that i have never met this dr. but this is dr. info i was given by the National Organization Of Rare Diseases