Realm Of Caring

3 recommendations and reviews from 2 people

• Referral from July 4, 2014
  

  Laura L. asked:

  I'm new to this site. In reading all the posts, I can already tell it will help us thru this new diagnosis. Our Em is 29 and was just diagnosed thru the latest intake EEG. I'm so confused why it took so long to diagnose. She has had epilepsy since age 4 and just recently started having atonic seizure types. They got worse while on Onfi. Now she has fewer drop seizures but we are by her side anytime she walks. Life has changed. Anyone else have a later in life diagnosis? We've had other intake EEG's in the past. She has VNS and although it doesn't seem to be the "miracle" we were hoping for, it does help periodically. We live in Co. Doc's don't recommend the Charlotte's Web for her. They point out problems that don't get reported that are of a huge concern. Anyone know of a great LGS neurologist in either Colorado or AZ? I won't keep rambling. Just wanted to thank you for accepting our request and I look forward to connecting.

  

  Stephanie P. replied:

  Realmofcaringfoundation.org also has doctors, I believe, that are fluent in Charlotte's Web.

  

  Angela F. replied:

  Check with Realm of Caring on how to wean from onfi when going on Charlotte's Web. They will be able to instruct on proper dosage & weaning

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Recommendations from Stephanie P.

• Referral from October 9, 2014
  

  Susannah K. asked:

  What meds work/have worked for your kiddos with LGS? Our trial with Keppra has been nothing short of horrible. Recommendations would be awesome. Our doctor gave us the choice of Keppra and some other drug that can be hard on liver. Apparently I'm going to have to tell him what I want for my son. Thanks in advance!

  

  Stephanie P. replied:

  Banzel. Www.realmofcaringfoundation.org for MMJ

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