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Lupus Team
About us
We created this community page to introduce clinical research study opportunities to those living with lupus. It’s also a place where people living with lupus, and those who support them, can get information and make connections. Lupus Team is a destination to learn about programs like clinical research, observational studies, and disease management programs aimed to bring about new treatments and improve overall health.
Bioclinica, the owner and administrator of this page, works with pharmaceutical and biotech companies partnered with clinical trial organizations (CROs) that research and develop new medicinal treatments. Our focus is to bring clinical research study opportunities to patients and their families and support them in enrolling in clinical research studies. When Bioclinica has specific opportunities for people with lupus to participate in clinical research, observational studies, and disease management programs, we make those opportunities available to you.
Not every clinical research study will be right for every patient, which is why we educate people to be informed about their participation before taking the next step to be screened and assessed for eligibility in order to meet the medical requirements of a clinical research study protocol. While Bioclinica is not directly involved with any clinical research study design, we do assist clinical teams to view their clinical research studies from a patient perspective and experience. We thank you for your continued support of this special community. We personally thank all of you in joining us in our quest for new and better treatments through this collaborative clinical research effort.
Rules of Use
Bioclinica is committed to providing a community page where information and experiences can be exchanged. In no way should information conveyed in this public forum be used for diagnosis and/or treatment. Any health or medical information posted is not intended as a substitute for specific medical advice... show more from a healthcare professional. Visitors are advised to always consult with his or her primary physician when seeking medical diagnosis, professional advice or proceeding with a treatment option.
Since this is a public forum, there are a few rules for visitors to be aware of – and comply with:
- All visitors must be eighteen (18) years or older to post on this Facebook page.
-People may express a view that is different from others. In all cases, all posts must be courteous and respectful. All posts should identify with the purpose of this page, which is to inform and make connections with others in this community.
-Posts should not contain anything that is threatening, derogatory, obscene, pornographic, profane accusatory, or offensive in any manner. Posts may not contain anything that identifies or could be used to identify a specific person or company – For example- we will remove at our discretion any posts about Dr. XYZ or Company 123, unless the information is already in the news and/or in the public domain.
-Comments and opinions that are posted by visitors do not necessarily reflect the opinions of Bioclinica, Lupus Team, our employees, or affiliates. We do not endorse or verify the content posted by visitors and do not warrant their accuracy.
-This page should not be used for promotional use or for personal gain. The mention of name brands, sales pitches, and/or any post that is intentionally misleading will be removed at our discretion.
-Bioclinica and its affiliates may use any comments or information posted on Lupus Team for use in developing clinical research information for patients or providing guidance with a clinical protocol with the intent of furthering medical developments for people living with lupus.
-Market research surveys and/or clinical research questionnaires may be made available to this Facebook community. Bioclinica is certified to the EU-U.S. Privacy Shield Framework to comply with data protection requirements when transferring personal data from the European Union and Switzerland to the United States. Therefore, information collected will be kept confidential, and only shared with express permission provided by the respondent.
Adverse Event (AE) Reporting & Crisis Support:
Bioclinica, Lupus Team, our employees and our affiliates are not responsible for collating safety information and reporting through social media. This Page is not monitored 24/7 and we are unable to provide crisis support.
If you have any questions or concerns about any medications you’re taking, or have an adverse reaction, contact your healthcare provider right away. According to the FDA an adverse event is any undesirable experience associated with the use of a medical product in a patient. The event is serious and should be reported to FDA when the patient outcome is: Death, life-threatening, disability or permanent damage, congenital anomaly (birth defect), Required Intervention to Prevent Permanent Impairment or Damage (Devices), other serious events.
To report an adverse event for a marketed drug product, go to the FDA: http://bit.ly/1w6XJWP
MedWatch Form: http://bit.ly/1KGErtT
For investigational products (associated with a clinical trial) you must report the event to your Clinical Investigator or https://clinicaltrials.gov
For depression and thoughts of self-harm, know that help is available to you.
USA: http://bit.ly/2gFnmM2
International: http://bit.ly/2cnCB6T
Changes to the Rules of Use
The Rules of Use are subject to change without notice. To ensure posts and those of others comply with the Rules of Use outlined on this page, please review this section regularly.
Updated: 11/16/2017
show more
Bioclinica, the owner and administrator of this page, works with pharmaceutical and biotech companies partnered with clinical trial organizations (CROs) that research and develop new medicinal treatments. Our focus is to bring clinical research study opportunities to patients and their families and support them in enrolling in clinical research studies. When Bioclinica has specific opportunities for people with lupus to participate in clinical research, observational studies, and disease management programs, we make those opportunities available to you.
Not every clinical research study will be right for every patient, which is why we educate people to be informed about their participation before taking the next step to be screened and assessed for eligibility in order to meet the medical requirements of a clinical research study protocol. While Bioclinica is not directly involved with any clinical research study design, we do assist clinical teams to view their clinical research studies from a patient perspective and experience. We thank you for your continued support of this special community. We personally thank all of you in joining us in our quest for new and better treatments through this collaborative clinical research effort.
Rules of Use
Bioclinica is committed to providing a community page where information and experiences can be exchanged. In no way should information conveyed in this public forum be used for diagnosis and/or treatment. Any health or medical information posted is not intended as a substitute for specific medical advice... show more from a healthcare professional. Visitors are advised to always consult with his or her primary physician when seeking medical diagnosis, professional advice or proceeding with a treatment option.
Since this is a public forum, there are a few rules for visitors to be aware of – and comply with:
- All visitors must be eighteen (18) years or older to post on this Facebook page.
-People may express a view that is different from others. In all cases, all posts must be courteous and respectful. All posts should identify with the purpose of this page, which is to inform and make connections with others in this community.
-Posts should not contain anything that is threatening, derogatory, obscene, pornographic, profane accusatory, or offensive in any manner. Posts may not contain anything that identifies or could be used to identify a specific person or company – For example- we will remove at our discretion any posts about Dr. XYZ or Company 123, unless the information is already in the news and/or in the public domain.
-Comments and opinions that are posted by visitors do not necessarily reflect the opinions of Bioclinica, Lupus Team, our employees, or affiliates. We do not endorse or verify the content posted by visitors and do not warrant their accuracy.
-This page should not be used for promotional use or for personal gain. The mention of name brands, sales pitches, and/or any post that is intentionally misleading will be removed at our discretion.
-Bioclinica and its affiliates may use any comments or information posted on Lupus Team for use in developing clinical research information for patients or providing guidance with a clinical protocol with the intent of furthering medical developments for people living with lupus.
-Market research surveys and/or clinical research questionnaires may be made available to this Facebook community. Bioclinica is certified to the EU-U.S. Privacy Shield Framework to comply with data protection requirements when transferring personal data from the European Union and Switzerland to the United States. Therefore, information collected will be kept confidential, and only shared with express permission provided by the respondent.
Adverse Event (AE) Reporting & Crisis Support:
Bioclinica, Lupus Team, our employees and our affiliates are not responsible for collating safety information and reporting through social media. This Page is not monitored 24/7 and we are unable to provide crisis support.
If you have any questions or concerns about any medications you’re taking, or have an adverse reaction, contact your healthcare provider right away. According to the FDA an adverse event is any undesirable experience associated with the use of a medical product in a patient. The event is serious and should be reported to FDA when the patient outcome is: Death, life-threatening, disability or permanent damage, congenital anomaly (birth defect), Required Intervention to Prevent Permanent Impairment or Damage (Devices), other serious events.
To report an adverse event for a marketed drug product, go to the FDA: http://bit.ly/1w6XJWP
MedWatch Form: http://bit.ly/1KGErtT
For investigational products (associated with a clinical trial) you must report the event to your Clinical Investigator or https://clinicaltrials.gov
For depression and thoughts of self-harm, know that help is available to you.
USA: http://bit.ly/2gFnmM2
International: http://bit.ly/2cnCB6T
Changes to the Rules of Use
The Rules of Use are subject to change without notice. To ensure posts and those of others comply with the Rules of Use outlined on this page, please review this section regularly.
Updated: 11/16/2017
show more
Recommendations and reviews from 1 person
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June 8, 2013
Jenny C. asked:I need recommendations for a Nutritionist. One that is familiar with autoimmune disorders preferably. AND GO!Rob F. replied:....and this. Info and community. https://www.facebook.com/LupusStudy
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