DO any of you know of a good pediatric urologist in your area that treats IC? Or does you child have IC and you can give Erin some advice on how you handle it? http://www.ichelp.org/about-ic/children-ic/
Pat B. replied:
Erin Calano, I'm not sure how far Bradenton, FL, is from you but there is a urologist who is participating in the LINKA study. I'm not sure if your daughter is old enough for that study but typically the urologist that participate in these study's are well-schooled in treating IC. The doctor is: Florida/ Sean Castellucci, DO Manatee Medical Research Institute 200 3 rd Avenue West, Suite 120 Bradenton, FL 34205 Study Coordinator: Amy Boucher (941) 792-0340 Ext. 1328 a.boucher@urology-partners.com If you'd like to know more about the study or IC, sign up for the newsletter at www.ic-network.com. There is also a great support forum there that can give you lots of info.
Just wondering if anyone knows where to get ic awareness bracelets in australia. Or maybe somewhere in america that posts to australia. Im really desperate to have one .. thank you :)
Jackie I. replied:
https://www.ic-network.com/ go to their ICN Shop. Plus this site has items for sale as well.
Jackie I. replied:
ICN has them. Interstitial Cystitis Network has them. There is also another store that has awareness items, they are all over you just have to look for them.