Does anyone know of a great doctor who is familiar with HEDS in San Diego or So Cal? I see a rheumatologist but he is not familiar with EDS and nothing is helping my...
Ehlers-Danlos F. replied:
You may be able to find someone through these resources. EDNF Physicians Directoryhttp://www.ednf.org/index.php?option=com_sobi2&sobi2Task=search&Itemid=99999999 The next two don't have contact information, but if you see someone you'd like to contact, Google them: EDNF Professional Advisory Networkhttp://www.ednf.org/index.php?option=com_content&task=view&id=21&Itemid=213 Speakers for 2011 EDNF National Conferencehttp://www.ednf.org/index.php?option=com_content&task=view&id=2068&Itemid=88889230 If you're willing to go to northern CA, see the post just below yours from Scott Morrow; it includes some information on doctors in N. CA. [EDSerMark]
Teresa H. replied:
I just saw Dr. Lin at the Pain Center at Cedars Sinai. I got a same wk appt & for the first time a doctor believed my pain & gave me the meds & treatment I needed. Not only did he squeeze me in for a spinal injection because he knew we didn't live in LA & were going home a few days later but he told me he'd be happy to refill any non-narcotic med over the phone or sched my next procedure or test without my having to make the 6 hr drive for a follow up. My husband really liked him too.
Cherilyn P. replied:
Thank you for the wonderful recommendation Teresa! I will check Dr. Lin out. Did the spinal injection help you?