Michelle needs our help: my son is now almost 4 and was diagnosed with a strain of mito that has never been seen before we live in ny and have seen a neurologist in nyc...
Dawn M. replied:
http://www.mitoaction.org/forums/list-mito-specialists List of Mito Specialists | Mitochondrial Disease Action Committee - MitoAction www.mitoaction.orgPhysicians Offering Care to Mitochondrial Disease Patients
Gina B. replied:
Agree with Andrea or I was thinking Dr Korson in Boston.
Kat S. replied:
Dr Amy Goldstein UPMC
Gretchen K. replied:
I agree with Dr. Korson. Waiting to see him specifically is worth the wait. Tufts Medical Center.
Cory F. replied:
Also check out Dr. Richard Kelley and Dr. Sakkubai Naidu at Kennedy Krieger Institute in Baltimore, MD. We take our son there and he is one of the few they have identified with a weird Mito deficiency they never saw before. Their research is amazing! (Next to John Hopkins Hospital)
Holly L. replied:
Upstate or down? I live in NY too. We see Dr. Anselm at Boston Children's
Patti D. replied:
Have you seen Dr. Korson at Tufts in Boston?
Christine D. replied:
I just saw Dr Korson at Tuft's in Boston and it was the best thing I have ever done! I did not have to wait that long either. Maybe a month and a half to 2 months.