HPS Network

2 recommendations and reviews from 2 people

• Referral from September 11, 2013
  

  Mari M. asked:

  Heather Kirkwood, Karen Tillman, Ashley Appell HELP... *URGENT* Sarah is in the ER with Damaris, and they have called in CPS because of her bruising... I need someone to be able to communicate with the docs there about HPS... Preferably Donna, if there is a way we could connect ASAP send me a phone number they contact to my private message so I can pass it on to Sarah Carrier... Thanks guys

  

  Karen T. replied:

  Just hang in there, if you can't reach Donna at 1 800 789 9477 then u can get a hold of me at home I'll pm you my number!! Just hang in there guys (((HUGS)))

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• Referral from September 28, 2012
  

  James M. asked:

  Thanks to everyone for your advice. I spoke with Jewish Hospital in Louisville Ky, the said my insurance wasn't good enough for them also, but she was nice enough to tell me to call and get a medicare spplemental plan and it would work. I call humana and anthem, they both would work, Humana PPO plan i can go out of my network and see any doctor and any hospital, finally i feel alittle less streesed out. Rick you suggest Methodist in Indianapolis, has anyone heard anything about Jewish Hospital in Louisville Ky. Jewish would be the closest to me . Know i just have to deside which place i want to go to . It would help if any one had any info on Jewish Hospital , if they do alot of Lung transplants there. Again thank all of you for your help and kind words.

  

  Heather K. replied:

  Really, I'm so so sorry to hear that. Disappointed as well. But, am very happy to read that Indy is going to work with your medicaid....thank God. Let us know when you get a date up there. Have they sent you any info etc yet? Heather Kirkwood Director of Outreach, Vice President Hermansky-Pudlak Syndrome Network One South Road Oyster Bay, NY 11771 1 (800) 789-9HPS www.hpsnetwork.org Personal blog: www.heatherkirkwood.blogspot.com Search the Web at www.goodsearch.com and choose the HPS Network as your charity!

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