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Kyran Richmond Fundraising
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When Kyran was 6 years old he was diagnosed with Retinitis Pigmentosa which is an eye disease in which there is damage to the retina. At the time this news was devastating but we had no idea that worse news was yet to come.
On 15 March 2011 after numerous tests we were informed the heartbreaking news that Kyran in fact had Juvenile Batten Disease. This is a rare genetic metabolic neurodegenative disease it robs the child of there sight, before developing seizures then loosing the use of there limbs and bodily movements eventually needing 24hr care, there is NO CURE for this devastating disease.
On 15 March 2011 after numerous tests we were informed the heartbreaking news that Kyran in fact had Juvenile Batten Disease. This is a rare genetic metabolic neurodegenative disease it robs the child of there sight, before developing seizures then loosing the use of there limbs and bodily movements eventually needing 24hr care, there is NO CURE for this devastating disease.
5 recommendations and reviews from 5 people
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January 10, 2015
Nicola A. asked:I'm running the Great Edinburgh 10 miles in April...looking for a local charity to run for. Can anyone suggest any please? I'd rather run for a local charity and know my money is going direct to those that need it than run for one of the bigger charities where money is spread out between management and those in need.Kerry G. replied:https://m.facebook.com/KyranrichmondHilary N. replied:Kyran Richmond fundraisingNicola F. replied:Kyran richmond fundraising xJodie W. replied:Kyran richmond fundraisingKel W. replied:Kyran Richmond fundraising x
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