Hello! I'm looking online to find the best information to give to people involved in my care. One that is helpful for doctors as well as caretakers. Could someone refer...
Janice O. replied:
There are several very informative handouts on the EDNF website. http://ednf.org/patient-resource-library
Does anyone know a Rheumatologist, Orthopedics, and/or Primary Care Doctor in VA that has experience with Ehlers Danlos Syndrome - Hypermobility Type? Or Hypermobility...
David L. replied:
What type of doctor are you seeking? I know of a Primary Care Physician (PCP) that's very good, but I believe I'm his only patient with Hypermobile joints. My Rheumatologist is better than any other that I've been to... I don't believe he totally comprehends how it affects me; however, he's been extremely helpful and supportive. It might be that I need to remember to tell him that all my joints are affected lol. PCP - Dr. Haroon Hyder at Patterson Family Practice (9600 Patterson Ave, Richmond, VA (804) 741-6200) They're with Bon Secours, and like VCU they have aid for those with low/without income (Bon Secours Care Card). However, it doesn't cover everything, such as medications and some specialists. Rheumatologist - Dr. James Brodeur (8201 Atlee Rd, Mechanicsville, VA 23116 (804) 730-5222) I'm about to start being seen at VCU Medical Center (Torture Center) once again... So I'll have fun attempting to find a needle in a haystack (or good physicians in a Torture Center).
Ehlers-Danlos Syndrome or Child Abuse? It is a growing problem for our community that parents of kids with EDS are being accused of abuse of some form. It is time that...
My son is 4 and has EDS. He gets tired very easily. He has low muscle tone and pronation of the feet bilateral as well. We are at the point where we could use a...
Center A. replied:
Hi Kelli Back! I will ask Mr. Wilson to get in touch with you about this matter. All the best, -J.H.
Desperately in need of a team of doctors who know about and can treat symptoms of EDS in Chicago area. My beautiful niece (16) is struggling with this disease and we...
Center A. replied:
Dr. Brad Tinkle Advocate Lutheran. He is one of the leading specialist in the EDS community.
do you happen to have a list of doctors that can help myself (37 year old female) and my two kids with HEDS? We live in the state of Michigan. (Grand Rapids area) I have...
I recently went to see my Cardiologist, I have Classic EDS and he thinks I should have an EDS doctor in addition to all my other specialty doctors. Originally I was...
Does anyone out there know of a Doctor in the Nashville, TN area that can show me how to put my elbow and hip back in place myself? They are continually dislocating and...
Does anyone have recommendations for EDS doctors for children? Many doctors won't even look at my daughter because of her EDS diagnosis. We are in Saginaw County. ...