How do you talk to your rheumatologist about pain medicine-specifically narcotics? I was diagnosed w/ JRA at 14 and am now 30. I'm on Xeljanz, prednisone,...
Thomas G. replied:
Hello Clare, Sorry to hear of your painful and long battle with RA. I hope the information below can be of some help to you, or at least something to think about. An other option or opinion on RA. From Wikipedia, the free encyclopedia: “Thomas McPherso n Brown” (1906-1989) was a renowned rheumatologist who, over a medical career spanning 50 years, pioneered antibiotic treatments for rheumatoid arthritis, scleroderma, lupus and other collagen diseases. He used them to treat over ten thousand patients, often inducing remission in their disease.” So that is about 200 new patients per year for 50 years. From the book "The Arthritis Breakthrough" and testimonials I have read, Dr. Brown treated mild early stage RA, moderate RA, and longstanding severe RA. Some people with RA who had it for many years, 10 to 20 years. Since the death of Dr. Brown it looks like the conversation, interest, and general information about antibiotics for RA have really fallen into the shadows of the medical community, for whatever reason. But there are a number of people even in 2014 that still try AP (antibiotic protocol). The percentage is very small compared to the mainstream, my opinion, because people don’t know about it. I am taking "Minocycline" 100 mg. now. I take two capsules MWF or six caps per week. After twelve weeks on "Minocycline" I feel very good. I need nothing for pain for the past 4 weeks, and no swelling in my hands and ankles like before. The swelling went away after the first week on antibiotics. I responded to the “Minocycline” faster than what my Dr said 3 to 6 months to see improvement. i also totally changed my diet. My strength and endurance continue to improve and I would say I am at 90% of what I was before I had any RA symptoms eight months ago. For five months all I could do was clean the kitchen or vacuum and then I was done for the day. I have more strength and energy, I don’t have that feeling of extreme fatigue, any more. What if someone told you there was another way to treat RA with less or no side effects then with your current medications. Does it sound too good to be true? Many go from one med to another to another etc. It never stops. The good news, there is another way. Back in the 1930's and 40's Dr. Thomas McPherson Brown did RA research and his theory was that a certain bacteria causes RA and can be treated with certain antibiotics. His opinion was that the bacteria (mycoplasma) likes to live in the fluid of the joints and hides inside good healthy cells. They multiply and move to other joints in the body. That’s why different joints hurt at different times. That is what our immune systems are working on, these illusive bacteria, but can’t get rid of them without help from certain antibiotics. Sort of like ear or sinus infections. According to Dr. Brown that is what is causing the inflammation, our immune system fighting this bacteria. The fight goes on until the bacteria is under control. Some will ask why haven’t we heard of this before? Others will say that pharmaceutical companies can influence the medical professions treatment and drug usage. New drugs make big money while old drugs like antibiotics don’t. click on www.roadback.org for another point of view on RA. Read some of the 130 testimonials. Google 1. Dr. Thomas McPherson Brown and Google 2. mycoplasma RA this book explains all "The Arthritis Breakthrough" (older printing) by Henry Scammell. “The New Arthritis Breakthrough" latest printing and is also on Kindle. find them Amazon The other point of view is antibiotic treatment. This is non-standard treatment and most RA doctors won’t do it. If you email (apdoctors@raodback.org) ask for a list of Drs in your location that do use antibiotics for RA. If you think this is worth a try, send the e-mail. Google (antibiotic protocol doctors) for more information. The three most used antibiotics are Minocin, Minocyline, and Doxycycline. Some say “Minocin” the brand name works the best. Some also say that Doxycycline is not as strong as Minocycline. One last question; What if Dr. Thomas McPherson Brown was right about his theory and treatment of RA? http://recoveringarthritics.blogspot.com An article on AP (antibiotic protocol) http://www.tmgp.com/minocin.htm An article on antibiotics used. http://www.doctoroz.com/.../antibiotics-helpful... Click on comments top of the page for some 77 testimonials. Suggestion: If you really want to try AP talk to an AP Doctor, who is the expert in antibiotic treatment for RA, not a mainstream Rheumatologist. As we all know no medical treatment is effective for 100% of the people 100% of the time. So far this antibiotic protocol is working for me and that is why I am passing this information on this RA Forum. For me the difference is night and day. Sorry about the comment length. All the best to you, I hope you feel better. Tom Gulden
Jennifer M. replied:
I was diagnosed only three years ago. On Humira, Prednisone, Mobic, Tranadol, muscle relaxer I've been on several meds that didn't work or were killing my liver. I don't feel like any of them are really helping me just covering up pain. I've noticed t hat some of the pain meds don't help as good anymore I need more or stronger. It's scary to just watch yourself get worse over time. There is another FB group for RA handled naturally and they are staring a Detox Clean Eating diet starting Jan 5. I want to try it and hope that it helps me relieve some of my pain without more meds and maybe give me some energy back.
Hello Ladies,
My mom suffers from chronic pain, she was diagnosed with fibermyalgia. She is desperately looking for a rheumatologist that can help her. If anyone knows...
Sue M. replied:
I have been living with Fibro for 14 years. There are options and resources out there. (natural pain management methods, pain program, 2 Ottawa support groups, etc) I would be happy to discuss them with anyone who is in need. I also have a very informative Fibro documentary on my website, click on "The Last Diagnosis". http://www.handmadebysue.ca/?page_id=72
Angel H. replied:
Dr. Kapur is the best in Ottawa. Read his reviews on ratemd.com
Brenda H. replied:
I have clients who see Dr Finestone at Bruyere for fibromyalgia. However he is a physiatrist.
From Stacy Murphy Cosper:
I am possibly moving to the Phoenix AZ area next year...and I was so excited about it until I realized my Dr's weren't coming with me. Anyone...
Amy G. replied:
Check out feedingmatters.org. They're based in Arizona and may have a list of docs.
Jacqueline M. replied:
She's looking for adult not peds :) we have a support group www.facebook.com/groups/azsupport
What a wonderful community you all are. So helpful.
I can't thank you enough for all the different names of doctors you gave me for my husband.
We used to have a...
Can anyone recommend a neurologist or rheumatologist any other clinician(s) who may have any experience and (or) some new ideas treating "INCLUSION BODY MYOSITIS"?
Lor P. replied:
There use to be a trial in Ohio with Dr. Jerry Mendell. But it looks like it's from last year.