We are new to epilepsy. My 7 year old son was just diagnosed with a severe form. He stop breathing and needs life saving ntervention to help him too start breathing...
The F. replied:
HI Katie, My name is Nicole Ingram and I am the Family outreach coordinator for The Matty Fund. I encourage you to join the group page that we have called Discovering My Epilepsy https://www.facebook.com/groups/107940073643/
The F. replied:
You will find a group of parents of children with epilepsy, some of which have gone through the therapy dog process and can give you some important tips and information. I am also here if you need me! I can be reached through the facebook page or email Nicole@mattyfund.org We run many programs for the children through out the year. If you could, visit our website www.mattyfund.org and fill out an intake form and I will be able to add you to our data base and contact list. I look forward to learning more about your son. Nicole
I have a pain in the neck! No, it's not Kirtis, but I've had it since January. Some days are better than others, but most days it gives me an excruciating headache on...
Kierstie C. replied:
I'm sure you can just google it. Mum does a lot of her research online. I found this http://www.feldenkrais.com/method/article/felden_what/
Hayyy Facebookers. I'm dairy-free for two weeks and possibly long term while my doctor looks into some stuff, anyone have any dairy-free suggestions for things like...
Hi All,
The Matty Fund was recently contacted by a Rhode Island family who is looking for your recommendations for a new primary care physician / pediatrician for their...
Mary K. replied:
That is not easy to find as PCPs are such generalists. I do like Dr Dierolf, a pediatrician in Portsmouth overall but cannot vouch for her epilepsy knowledge. My daughter was 17 upon diagnosis. When I mentioned the odd occurrence of her fainting a few times, she said it was probably hormonal.
Jennifer P. replied:
I use Dr. Dierolf in Portsmouth (my daughter was 12 upon diagnosis) and she was very helpful. She helped me understand information given to me by the neurologist and even called the neuro when we were having trouble. I had another pediatrician tell me it was likely my daughter was on drugs when she presented with her first grand mal seizure.
Cherie B. replied:
Dr Dierolf is wonderful.
Mary K. replied:
Our problem is that no one saw her "faint" initially. Later, she had a grand mal in front of me, which then led to a diagnosis. I don't fault Dr. Dierolf in not knowing.
LeeLee P. replied:
I have been very satisfied with Lincoln Pediatrics in Lincoln, RI. We primarily see Dr. Thomas Hines but all the docs in the practice have a working knowledge of all of the patients. They never hesitate to research symptons and refer to specialists if they feel it is out of the realm of expertise. There are several patients with epilepsy that we kknow of that use Lincoln Pediatrics as their PCP.
Christine D. replied:
We use Dr Robert Griffith at Pediatric Associates in East Providence. He and numerous of the other docs within the practice are great with special needs children. He works really well with the Neuro we use. He has no problem picking up the phone to consult the specialists or call us. The practice has sick hours (limited) on Sat and Sunday.