Rheumatologists in Worthing, United Kingdom

@lula- maybe printing this off for your gp might make him take you more seriously...http://www.dwp.gov.uk/publications/specialist-guides/medical-conditions/a-z-of-medical-conditions/joint-hypermobility-syndrome/

I am not aware of an official sub-category of rheumatology called 'genetic rheumatology'. However, if you look at his profile on the UCLH site you can see that connective tissue disorders are listed in his 'special interests' section, so although I have not personally met him and so cannot say whether he would be suitable, his interest in connective tissue disorders means that he may be. Best wishes, Hannah. https://www.uclh.nhs.uk/OurServices/Consultants/Pages/DrDebajitSen.aspx

Hi Kimberley, don't know if you are in a position to but I went private to get my daughter diagnosed by Dr Hakim at Hospital of St John and St Elizabeth at St Johns Wood in London, where they have a private hypermobility unit. He is amazing and worth every penny. He sent a fantastic letter to our GP detailing all aspects of the condition and what he had advised to be done. Now our GP does what we ask most of the time. Good luck