Hello neighbors, I am hoping that someone here can help. My husband needs a lyme desease/tick virus specialist who will help diagnose and treat his symptoms. We don't...
Jill F. replied:
Dr Carol Savage, Harvard Mass. She's great!
Eileen N. replied:
The Rothfeld Center in Waltham.
Walter H. replied:
Mary McNaughton-Collins at MGH - helped me through two bouts of lyme disease.
Rosalind S. replied:
There's a huge controversy over Lyme Disease, which I learned about when we thought my husband had it. The Mass General specialist has a reputation for being a "Lyme denier" and for coining the term "post-Lyme Syndrome" to explain (away) why so many people, like your husband, are still so sick after a couple of courses of antibiotics. The biggest name in the Lyme field is Richard Horowitz, who has a clinic in Hudson, NY. But if you want to start with a local Lyme doctor, some people like Dr (Jean?) Hubbuch in Watertown. To get a handle on the disease and why it's so complex and controversial, I highly recommend Pamela Weintraub's very readable book (she's a science journalist), Cure Unknown: Inside the Lyme Epidemic.
Lori L. replied:
Dr. Sam Donta. Has a Boston office. He saved me. Pm me with any questions.
Lahra T. replied:
Hi Ksenia, I may be able to help direct you or answer some questions on a patient level. 617-823-5225. 25 years of neuro Lyme My Dr is Carol Englender in Framingham. Avoid MGH at all costs. Avoid Dean Center Get 2 books: Buhner herbal protocols for tick born disease & "how can I get better by Horowitz" It will help if you can learn as much as you can. Even with medical treatment Lyme is a "do it yourself disease" largely because of the fraud committed in the early 90's by Yale New haven hospital, IDSA and CDC. These entities (with a handful of Drs) acted as investors and tried to cover up the damage done by Lymerix (Lyme vaccine). The fraud was specifically changing the diagnostic criteria to rule out the neuro Lyme cases (85%). This made the vaccine appear successful for the remaining 15%. In reality you can't successfully vaccinate a varying antigen without actually given people the disease. Regardless of the story NPR tells, it was the FDA that said to Smith Kline "pull this vaccine off the market or we will". Get the Igenix test...it is the gold standard. Genova diagnostics also has some helpful testing. Good Drs will be familiar with these diagnostics and be using them.
Lahra T. replied:
Those following this thread may be interested in truthcures.org and action Lyme. Truth Cures was started by Kathleen Dickson, an analytical chemist, former Pfizer employee and Lyme whistleblower. Lyme can be broken down into 2 forms. * * *The neuro form is B cell immune suppression. The illness starts with spirochetes but is basically a Trojan disease. Once out of the blood stream and in the tissues ospA sheds fungal antigens creating endotoxins....leading to post sepsis syndrome like state.
Maribel C. replied:
Essential Oils for Lyme Disease Easy to use, powerful and can do no harm. A must have for your home treatments. Frankincense oil can help modulate immune reactions for those with cancer and reduce inflammation. Take 2 drops of medical grade frankincense internally 2x daily. Doterra has the only medical grade essential oils for internal use that we recommend patients. Also, you may consider putting 2 drops of oregano oil mixed with coconut oil on the bottoms of the feet 2x daily. Helichrysum, lemongrass and clove oil may also be beneficial. Lyme Disease Oils: Bergamont and Thyme oils work to help with lyme disease. Put a few drops on the bottom of your feet before bedtime or on the top of your head. Beware of possible sensitive reactions, dikute them with coconut oil or other carrier oils. Most essential oils are anti microbial and cannot go rancid. Any given oil contains 80-300 or more different constituents. The molecules in one drop of essential oils are so small they can enter the body anywhere on the skin. One drop on the skin starts circulating thru the body in 30 seconds. Marjoram works in painful muscles, it has anti-bacterial and anti-viral properties and can be used to calm the nervous system. Kidney Detox and Nerve healing: Juniperis antiseptic, detoxifying, increases circulation through the kidneys and promotes nerve regeneration. It evokes feelings of love, joy, and peace. Rub some over the kidney and adrenal area, and put a drop behind the ears for tinnitis, sound sensitivity. Sinus and Pain: Peppermint can decongest the sinuses, soothe headaches, ease depression, and can be used on sore muscles. I also love to put one drop of peppermint oil in 1/8-¼ cup of coconut oil and mix it with several tablespoons of celtic sea salt to make a body scrub. Liver Detox, Headaches, Pains: A drop of peppermint with 1 drop of lemon oil and 1 TBS of lemon juice in pure water before bed helps to detoxify the liver. Used on the temples for headaches or on body aches. Depression, Stress: Chamomile can be used to ease depression, calm and relax the nerves, and contains both anti-inflammatory and antiallergenic properties. Fennel oil is used to provide relief from menstrual cramps. Insomnia: Melissa is a powerful to help with nerve disorders and in dealing with the heart or the emotions. It is anti-inflammatory, eases depression, anxiety and insomnia. Melissa can help with herpes simplex lesions. Always remember to smell the oil in the bottle before applying. Happy to talk more about the amazing benefits of essential oils
Emilie C. replied:
Recently WBUR had a story on the Dean Center for Tick Borne Illness at Spaulding. http://www.wbur.org/commonhealth/2017/08/25/lyme-disease-clinic-dean-rehab
Adele O. replied:
Rosalind Shaw
Cheryl L. replied:
I have a friend who is living with chronic Lyme after it took 8 years to diagnose it. She manages it well and is active in this organization, which offers resources: https://globallymealliance.org/ Gook luck.
Linda E. replied:
Dr. Hubbuch in Watertown. She is excellent and helped 2 of my nephews and one cousin who were under-diagnosed and under-treated by other MDs and co-infected with various combinations of Borrelia (Lyme), Anaplasma, and Bartonella. Bartonella is particularly bad. It caused neurological symptoms in my nephew. The test takes a couple of weeks to develop and it requires a different course of antibiotics from Lyme. Most places don't test for this but you should insist if there are any neurological issues that aren't cleared up by Dox treatment. Good luck.
Christine B. replied:
Please call me...I have the perfect dr...813-892-6155.
Does anyone have feedback on general surgery at St Elizabeth's, Boston Medical Center and/or Melrose/Wakefield? I havent heard positive things about them and...
Veronika K. replied:
Geoff had emergency surgery at BMC years ago. They did a newer procedure which created a tiny incision and healed very quickly with very little scarring. Sometime later the surgery failed in a massive way and he had the surgery redone at Mount Auburn. The doc there didn't use the new technique and now Geoff has a massive scar which has an obvious misalignment, but that surgery worked and he's fine now. Not sure what the moral is, but maybe check into how experienced the doctors are and if the surgery is being performed by students. Sometimes newer isn't always better even if it's shinier and looks nicer.
Dawn S. replied:
Had my gall bladder out a few years ago but at Mount Auburn. For me it was a really easy recovery. Good luck!