This might be helpful for those looking for a new physician - I also *might* be able to help on occasion. We don't always know a nephrologist in your area, but when we...
Alport U. replied:
Gina Collazo Zayas - seems like we've been asked for Seattle before - let me check my emails and if I don't find anyone specific - I'll post a request for patient input.
Alport U. replied:
Yep! two years ago we had a referral to "I would use John Stivelman at U. Washington in Seattle. Mention my name." from Dr. Gerald Appel from Columbia. I hope this helps!
Alport U. replied:
Diane Capasso - so let me know if you wanted an adult or ped neph! I got my ped neph referral through a referral - connect those dots! Dr. Kashtan referred me to someone in LA - who then referred me to my ped neph and her team in OC. My adult neph, I asked many various physicians and people that I knew in the area and came back with the same name so many times I decided I must try him out - I am SO glad I did.... I hope he never retires!!!
Alport U. replied:
Dr. Charles Kaupke...he is in Orange by st Josephs hospital. I think he also has another office if Orange is inconvenient. I think it is in Newport beach? Not certain. Let me know if you have trouble finding the number.
Alport U. replied:
Diane Capasso - Yes!!! Dr. Gerald Appel, he is one of our medical advisory committee members - you are striking gold with your referrals through me Here's a link to our MAC members to give you more to read about Dr. Appel: http://www.alportsyndrome.org/about-alport-syndrome/medical-advisory-committee/ If she is on bp medication, that seems to indicate she is having symptoms. High bp is a potential symptom of AS. Have they checked her urine for blood or protein? Or your grandson? Hematuria is the very first indication one would find in a patient with Alport Syndrome. They should have their physician check their urine. Any patient with hematuria and certainly those that have developed microalbuminurea and/or proteinurea need to be under the care of a nephrologist and should consider obtaining a clear diagnosis of Alport Syndrome. Also, to clarify a fact here - your husband was born with Alport Syndrome - it is not something that materializes after birth, it is an inherent condition of the kidneys, eyes and ears that progressively worsens with time and can lead to renal failure (usually does for all males and some females), vision loss (correctable with glasses), and hearing loss (usually hearing aids can treat). There are other more rare eye conditions, etc. but this is the basic definition of Alport Syndrome. The formation of the protein chain when he was in the womb of his mother was not done properly and thus he was born with a genetic error classified as AS. I hope this helps. Here's some notes on diagnosing someone with AS: https://www.facebook.com/notes/alport-syndrome-foundation-of-usa/may-2012-alport-chronicles-how-is-someone-diagnosed-with-as/10150795912038857 And some notes on the genetics of AS: https://www.facebook.com/notes/alport-syndrome-foundation-of-usa/november-2012-alport-chronicles-genetics-of-as/10151390229173857 And just a link to all the Notes I have created over the years in case another topic strikes your fancy https://www.facebook.com/pages/Alport-Syndrome-Foundation-of-USA/289857036426?id=289857036426&sk=notes As always, feel free to ask questions! Love, Joy
Alport U. replied:
Diane Capasso - I got a response that might be useful: "I'm not sure that Dr. Appel is accepting new patients. Also, there are many big medical centers in NYC. See if you can find out if the family has any sort of preference. For instance there is: NYU Mount Sinai Beth Israel Columbia Just to name the big four. These are located at various points in the city. We have other MDs in the database that are located in NY." Let me know which facility they would prefer and I can request a nephrologist referral for that facility! Love, Joy P.S. I still think it is worth checking to see if Dr. Appel is available before you decide to go elsewhere, but we might as well get you a second option should Dr. Appel not be available.
Alport U. replied:
Sherry Marshall - Here's the response, hopefully you can find someone through one of these sites, sorry we couldn't find a specific doctor for you, be sure to print a copy of the treatment guidelines for any nephrologist you visit! "Here's what I found - http://www.cooperclinic.com/specialties_subspecialties.htmlhttp://www.sparkshealth.com/physician-directory"
Sherry M. replied:
Thanks so much for the information. Would it be better for me to see the Urologist or Nephrologist at Cooper Clinic?
Does anyone know of a really good doctor that does hormones testing and is really good and listens?
Racheal M. replied:
Dr. Donna Shipley at Shipley and Sills. (479) 226-3836. She is the best!!!
Misty H. replied:
Amy Plunkett has moved to New Roads Health in Rogers, AR. You can purchase a saliva testing kit at Lee's Pharmacy, then ma keep a follow up appointment with her. She'll review your results and prescribe bio-identical hormones for you. I've been seeing her 3 years now. Absolutely wonderful!
I need some advice and guidance regarding trigger point injections for chronic pain. How often can I safely have one done? Are there alternatives? I have "severe...
Going to have to break down and find me a doctor here. The problem is I don't trust doctors since they keep giving me meds that harm my one kidney. Not sure which Dr....
Virginia R. replied:
md family dr. the number is 785-5700 just in case ya wanna check inta it and they can tell ya more about him just a suggestion
Friends in the Fort Smith area, I am in need of a trust-worthy chiropractor that will take insurance. or a medical doctor to look at my back. I have got to get some...
Kim M. replied:
It's not really Fort Smith area, but I went to a great chiropractor here in Fayetteville! Millennium Chiropractic. He's also a sports medicine guy so he gives you physical therapy type exercises to do. With army insurance I paid a $26 co-pay and that's it.
Fred A. replied:
Dr. Eddie Floyd in Fort Smith, just off Rogers Ave. near Applebees. Good Christian man and not too shabby a chiropractor either!
Cindy G. replied:
Dr. Tracy Atha at Healing Point. She does Acupuncture, also. Really helped me.
El B. replied:
Dr. Floyd has been my Chiropractor for more than 20-yrs. I wholeheartedly agree with Mr. Ayers.
I need an OB doctor... apparently i cant go to a sparks doctor because i owe a bill from 2010... and the health department nor AHEC will see me. Because i am extermely...
Has a question for any doctor or dermatologist- my son has a bad rash on his feet n I'm not sure what it is. Psoriasis n eczema run in our family. Can anyone give me...