Neurologists in Rochester, NY

My sister sees Dr Schirmer (sp)with Geisinger. He came very highly recommended. He seems to be doing very well with her! He found things that no one else was able to find for years.

I see Dr Su Kanchana (she use to be at guthrie) she has an office with others in Big Flats but I see her for injections for headaches in Rochester.. At University of Rochester medical center. 585.341.7500

570-996-2700 he specializes in headaches

Dr. Mitchell gross Geisinger clinic Tunkhannock

I used to get cluster headaches years ago. Absolutely horrible, debilitating headaches. Nothing worked, so I would have the headaches until I vomited a few times. But I stared taking Beta Blockers for a mild heart condition, and I noticed that I hadn't...See More

I have the same symptoms as you. Sounds like pps syndrome, especially the fatigue. A few years ago, the Shepherd Spinal Clinic in Atlanta had a post polio program. Good luck

There is a group in Charlotte that provides PPS care they focus a great deal on the psychological problems faced by PPS victims, but they do have a physiatrist on board.

i have seen Dr. Bocenek as well i went to him for a couple of years he is the one that dx my pps and Dr Bruno book is great i highly recommend reading the book as every one else say i too have learn so much about polio and pps oh sorry i just seen your last post that you had already read the book

Thanks, I think I will make an appt. with Dr. Bocenek.

I live in High Point, NC. There is a fantastic neurology department at Bowman Gray School of Medicine/Baptist Hospital in Winston-Salem. I went there for several tests to determine just how much damage Polio actually gave me. Also I have a niece who lives in Hickory who drives to Winston-Salem for treatment for MS there. Hope you find a good doctor soon. The trick is to pace yourself........I know, it is really difficult.

Its only the last 2 years since i started having unexplained symptoms, the drs were blaming everything on my asthma and weight and arthritis, My breathing got so worrying they took me in thinking i had heart condition or clots n the lungs....Nothing, I never mentioned the ongoing exhaustion, tiredness, inability to lose weight, diet though i may.... Also swallowing problems, muscle and joint pain and now the leg stiffness and weakness and general hip and bottom pains. Also bowel weakness and bladder weakness. I did mention once PPS to my Dr, and he knew absolutely nothing and said well we don't really recognise that. In 1950 I contracted Parylitic Polio. in my hips and both legs, at the age of 18 months and lost all use beneath the waist. When I recovered I wore a calliper and regained my ablity to walk. went on to a very active mid-life for which i think I am now paying the price.

check out the polio clinic at National Rehabilitation Hospital in DC.

Jessi Bowen I have sent emails to the leader of the group… no answer. Also spoke to the group coordinator at Care Partners and she couldn't help me other than suggest I ask folks in the group. Am going to go to their next meeting.

Marti you need to read Dr. Bruno's book," The Polio Paradox." It answers all the questions. I am still finishing the book. It's on Amazon book form and ebook. I wish I had this years ago.

Jeffrey Greenfield! NYC... best neurosurgeon!

I used to take clients to Andrew Stern at Rochester General. He was great!