I need help and advice. I am from Michigan. My son 14 years old had an xray last week due to an ankle injury. On the xray they found a mass on his distal tibia. ...
Molly M. replied:
Go with your gut!!! My other suggestion is MD Anderson Cancer Center is right next door to Texas Children's, both are good but MD Anderson is supposedly the best.
Daniel E. replied:
I don't know who your pediatrician is, but just get to a orthopedic surgeon! They should be able to get you right in if you tell them the situation. Seriously, Call Dr Les at Royal Oak Beaumont, her office is in the Rose Cancer Center (so is the pediat...See More
Cheryl C. replied:
Tracey Taylor we were in Birmingham the same time as Callum for Emma's 2 nd leg femur/knee replacement.. She was the moody teenager I. Girls bay haha x
Ann G. replied:
Whatever you do, you ABSOLUTELY need to get to a sarcoma center. If this is osteosarcoma, it is aggressive and deadly. Find a sarcoma center at www.sarcomahelp.com. You need a specialist, immediately.
Cheryl C. replied:
Yep Tracey Taylor.. Moody teenage girls week... What a joy!! Haha x
Ann G. replied:
MD Anderson is a sarcoma center, with a 5 year survival rate well above the national Average.
Sean N. replied:
Get the MRI, and get opinion from ped orthopedic oncologist/surgeon. The guy we used in Charlotte is Dr Jeff Kneisl. At least call his office and I am sure he can recommend someone in your area. As some of the others on this tread mentioned, make sure...See More
Stacy B. replied:
OS doesn't show up in blood or urine...only a biopsy can determine. Why are you travelling so far from home? Dr. Meyers at Sloan-K, NY...Dr. Dorman's at CHOP,Pa.
Liz C. replied:
If you are in Michigan you can come to Milwaukee. Dr Donald Hackbarth. Sarcoma Center at Froedtert and the Medical College of Wisconsin.
Christen H. replied:
Definitely you want an orthopedic surgeon with osteosarcoma experience. WE are in Boston and my daughter did all her chemo at Tufts but had her surgery at Boston Childrens. They had no problem coordinating. We did consult with the Jimmy Fund oncolog...See More
Manuel G. replied:
We never went to Texas but I was told Ted Kennedys sons dr was from Texas and our oncologist would speak to him on a regular basis:) our son was 7 yrs old when he was diagnosed with bone cancer on his knee:( he passed away at 10 yrs old:((Get a second opinionGet a biopsy then at least u will know what u r dealing with
Earl J. replied:
In the Detroit area there is Karmanos Cancer Center. They treat OS. Also, I did treatments at Beaumont Hospital in Royal Oak. Mine was head/neck Stage 2 and unknown to me I was at a very dangerous stage. But they did a 14 hour surgery in Nov. 2005, followed by radiation early 2006 and about six months of chemo later in 2006. So far results have been good.
Earl J. replied:
My oncologist explained it to me this way - that OS is rare and most oncologists will consult with the Big Three (MD Anderson, Sloan-Kettering, Mayo clinic) for OS treatment protocols that can be implemented at most hospitals capable of radiation/chemo. Gamma knife has since come available, but is not available everywhere.
Jodi R. replied:
Dr Scharschmidt and mayorson at OSU are amazing.
June M. replied:
Most OS pediatric specialists in the US follow the protocols of the Children's Oncology Group.
Mollie T. replied:
Since you live in KY why go to Texas. I commented early about my son. If you want call and talk to them at East Tn Children's Hospital. Doctor Malik is great. So is Dr. Pais. (865) 690-8961. I wish my son's doctor was still there but he quit when my son passed away. If it is OS it will spread quickly if not treated.
Earl J. replied:
Janet - UofM is a great option. My OS was head/neck. My oncologists suggested in 2006 that if my cancer proved to be very difficult to treat that they may refer me to UofM. Luckily that was not necessary. And supposedly if I cared to pursue the option, there is a doctor there who could reconstruct the part of my jaw removed during the surgery to remove the tumors.
Karen W. replied:
Come seeDr Lawerence Menendez at USC, Specialist for Ortho/Oncology both and Limb Salvage Surgery, and if needed he will ref, to Dr Sant Chawla at the Sarcoma Oncology Center for chemotherapy! These two doctors saved my daughters right leg and life! ...See More
Karen W. replied:
Dr. Lawerence Menendez@USC(323) 442-58301520 San Pablo Suite 2000...See More
Rebecca B. replied:
My original orthopedic oncologist now practices in Michigan I believe. His name is Dr. Theodore Parsons and he is out of the Henry Ford Clinic. He is a phenomenal surgeon. If I could get up there to see him, I would. http://www.henryford.com/body.cfm?id=38441&action=detail...
Shawna B. replied:
May i ask why u want to go so far away for treatment? We in michigan have a couple SUPER pediatric orthopedic oncologists, and childrens hospitals. My daughter is treated at Devos in grand rapids by a superb surgeon, Dr. Mathew Steensma. And also great oncologists! And the hospital itself is wonderfully geared towards kids and even their well being!:)
Daniel E. replied:
I was treated in michigan as well. Royal Oak Beaumont has an amazing pediatric oncology practice, as well as a childrens hospital, and my orthopedic surgeon (Dr Les) is there too. I couldn't have asked for a better team! Also, an orthopedic surgeon sho...See More
Can anyone recommend a good pediatric orthopedic dr? Not happy with how things went where I took Connor yesterday and really don't want to go back. Thanks!
Kristen S. replied:
Dr. Kristopher Aalderink - he is out of St. Joes in Ypsilanti. Nick has had to seem him for 2 different reasons. He does have a canton office too.
Amy D. replied:
Emma had a great one years ago, he was at Middlebelt and 6 or 7 mile I believe. Dr Stone or something like that. I can look and see if I can find the paperwork with his name on it.
Kim L. replied:
Dr. Ira zaltz out of RO Beaumont. It's been a couple years since we gave used him, but was happy.
Becky B. replied:
Dr. Frances Farley at Mott's. There is a satellite office in Canton, but I'm not sure if she goes there or stays at UM. She treated C's broken leg.
Jeanette R. replied:
Peter Galea was amazing with me! Think he does kids! Text and I'll give ya number! He does all the sports kids at Stevenson
Laura M. replied:
Mendelson Orthopedics out of St. Mary's
Marcia K. replied:
Dr Jeffrey michaelson at the Peretta center in novi. He works with the Tigers. Ben is seeing him right now.
Marian H. replied:
How about where Emily went? She went through U of M. Aweseome group of Dr.'s she saw!