Rheumatologists in Los Angeles, CA

Dr. Craig Carson, Oklahoma Arthritis Center 405-844-4978

Dr. Gary Solomon 305 2 nd Ave 17 & 18 th St NYC NY 10003 NYU Hospital For Joint Disease

Dr Rand Sommer Clinic of Internal Medicine Chesterfield Mo

Dr. Joseph Flood in Columbus OHio is extremely knowledgeable and a great communicator.

My doctor is the best her name is EMILY PINEDA at SOUTH TEXAS ARTHRITIS CARE CENTER adress : Legacy Oaks 5414 Fredericksburg Rd ,Ste. 15 San Antonio Texas 78229 Phone num: 210 615-9800 fax num: 210-615-9801 email ; www.happyjointmd.com I have AS and she is been taking care of me for more than 3 years.

Did not know that....Dr. Charles Griffith. Towson, Maryland

Dr. Martin Pevzner, Clarkston and Bingham Farms Michigan.

Dr. Mehmoodur Rasheed at Carle Clinic in Champaign, Illinois

Please note, while we truly want everyone's recommendations, we especially would love to add more physicians in the following states: Alabama, Delaware, Hawaii, Iowa, North & South Dakota, Nebraska, Nevada, Utah, West Virginia, & Wyoming. You can comment on the post, or email your recommendation to me at elin@spondylitis.org Thanks again!!

Dr. John Botson at Orthopedic Physicians Anchorage. In anchorage, ak

Dr. Ana Macasa@Willamette Valley Rheumatology (503)-538-7500 402 Villa Road Newberg, OR 97132

Dr. Stuart Weisman, boulder CO

THANK YOU all very much!! We appreciate all of these recommendations greatly, as will anyone looking for a rheumatologist with spondylitis expertise. We will update our directory in the next few days and will of course share with you all. (I will post a link here, and can also email it to you individually - simply send a request to elin@spondylitis.org) Thank you again!

Dr. Lester Miller, 622 Frederick Street Santa Cruz, CA 95062 (831) 458-0941. He is an amazing rheumatologist, and very well informed on AS.

Many thanks to you all again for your recommendations!! We have updated our directory with additions from you and others, and as promised we're sharing it here with you. Please go to http://www.spondylitis.org/saa-rheum-directory.pdf to view the updated directory. (Please note that unfortunately there were a few recommendations we weren't able to add due to those rheumatologists not being members of the American College of Rheumatology, as this is a requirement for inclusion in our directory)

I looked at the entry for Dr. Mehmoodur Rasheed in Illinois who I recommended. It is actually "Carle Physician Group" not Physical and the direct number for the rheumatology department is (217) 383-3131, the other number you will have to wait longer and be transferred, and I bet all of us are tired of doing any extra of that than necessary! I hope this helps.

Pooja Banerjee, MD Dallas, TX (469) 916-0677

Dr. Michael Spiegel Danbury CT. He is the BEST!!!!!!

Dr. Richard Brey 1500 Breckenridge st Owensboro Ky 42303 270-688-1200

A truly great rheumatologist (he's affiliated with NYU Medical Center): Brian D. Golden, MD 333 East 34 th Street New York, NY 10016 212-889-7217

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2847865/ yes, related...and NIH is the top of the research to understand both. Basically, our connective tissue..which is in EVERY cell of the body...is weak/floppy/sticky...and so veins and arteries don't move blood as well. So few MDs know either on their own, are told we are rare and shouldn't bother learning since they may "never see one of us"...so WE have to educate every one of them, keeping only those interested in LEARNING!

http://www.ehlersdanlosnetwork.org/research.html good resource.

Also www.prettyill.com

http://www.csfinfo.org/node/218 Great link with videos of Dr. Fraser Henderson and other doctors talking about things related to EDS and Chiari such as CCI and others.

lhttp://ednf.org/ is the primary source for all things EDS.

Katie Moudry yes they can be seen together. www.dinet.org but CCI can also cause and mimic the symptoms. CCI (craniocervical instability), retroflexed odontoid, or basilar impression or invagination? CCI is usually due to EDS and can mimic symptoms of Chiari, POTS, and dysautonomia.

Dmitriy Cherepinskiy is a very experienced medical malpractice attorney https://www.facebook.com/1579352252333563 Cherepinskiy Law Firm, PC (310) 407-8650 dc@clawfirmpc.com http://www.clawfirmpc.com 1875 Century Park East Suite 600 Century City CA 90067 United States

Awe congratulations on your sweet boy! What a doll! I bought tons of them and think we liked these ones the best http://www.amazon.com/gp/product/B00N40OTIW?ref_=cm_sw_em_r_awdotod_8ZtjwbT98HCAE_tt

A couple HemoMom recommended these when I asked (Johnny's now 16 mo and also severe A) http://www.lilmelon.com/collections/baby-knee-pads

And if you Are at all crafty, these are easy to make. http://westermanfam.blogspot.com/2013/09/diy-baby-knee-pads-tutorial.html?m=1

We used Crawlings and loved them! Stayed on and kept bruising and soft tissue bleeds away! www.crawlings.com

Hi Sherry, Sorry to hear! X-ray evidence is not a requirement for diagnosis. It can take 7 - 10 years of having spondylitis before there will be enough damage to show up on x-ray. The goal is to prevent as much of that damage as possible. You may find our diagnosis section helpful - http://www.spondylitis.org/about/as_diag.aspx As far a rheumatologist in Canada, unfortunately we don't really have contacts outside the country. There is a Canadian Spondylitis Association who also have a Facebook group - https://www.facebook.com/groups/6562917242/ They may be able to help refer you to a knowledgeable rheumatologist. All the best to you! Keep us posted.

Contact the arthritis society - they will recommend someone. info@mb.arthritis.ca or Toll Free: 1.800.321.1433

Jessica Jennings does amazing therapeutics.

Abigail at Float Chinese!

Thanks, Rachel! I can help- www.floatchinesemedicalarts.com.

I'm an acupuncturist, doula & specialize in reproductive medicine. My office is in Woodland Hills. www.acupuncturedoula.com

Has she seen a naturopath? I highly recommend Deborah Gleisner at Dragonfly Natural Health.

The symptoms you're describing (pain, backaches, headaches, tiredness & other mystery symptoms) sound to me like she might have chronic fatigue syndrome, which is a real disease that many doctors are still unfamiliar with &/or believe that the symptoms are "all in your head". I know about it because I have a family member who suffers from it. (His doctor is in Westchester though). Check out the website: http://solvecfs.org/what-is-mecfs/. (Also, this page includes a "quiz" to see if a person might have CFS: http://solvecfs.org/what-is-mecfs/do-you-have-mecfs/?gclid=CJavx4WJ-8UCFQqOaQodnwMACQ). Good luck.

Dr Jenny Diep in Manhattan is amazing. I highly recommend her.

I help people like your daughter all the time. I use Nutrition Response Testing at my Pomona office. If you'd like to talk about my approach, call the office after 11 on Monday and we can set up a free consultation in person or by phone. Or you could come to one of my Wednesday night classes to learn more. Check my Facebook professional page for more info.

Here is the link to our page- Dr Eric Goldman- https://www.facebook.com/DrEricGoldman?fref=ts I look forward to your call on Monday!

Dr. Steven Weiner, 6325 Topanga Canyon Blvd # 224, Woodland Hills, CA 91367 (818) 703-7595-- he is in the building just south of Victory at Topanga-- have been taking my mom to him for about 1 1/2 years now-- very patient, very thorough and a nice man-- really like him

If you are willing to go to Westlake, I like William Martin M.d. at the UCLA Satellite but it depends why you were going to a rheumatologist because I am sure you know that the subspecialize.

I agree, Dr. Firooz is terrible.

I agree Dr. Firooz is terrible. I have had so many problems with that office I could go on for days.

DR.VENYA SENGUPYA 818 583 2191 WEST HILLS EXCLLENT EXCELLENT !!USE MY NAME

Dr Nazanin Firooz, West Hills medical center area 818-598-0000. She was the fourth doctor I went to and the first to help. Really listens and truly knows her field.

Sometimes Childrens Hospitals are the only choice. My hip surgeon learned I had EDS and knew just how to take care of me.

UPMC MAGEE WOMENS HOSPITAL. Pittsburgh pa has a genetic dept. I have an appt in Oct called in may sent records for a review first by a counselor need a referal from another Dr first if you want more info cause it has been a process let me know. Pittsburgh childerens hospital also ha genetic dept.

Thank you! She's at greater Baltimore, this is the video that made us want to go to her http://vimeo.com/m/35531423

Most good geneticists don't do genetic testing unless they suspect vascular or if it will change the way they treat you. Otherwise it isn't medically necessary. Because EDS treatment is symptom-related, that's where she's coming from. Dr. Peter LeRoux at Penn is an awesome neurosurgeon, and he really helped me out after my DX.

I know Dr. F did more of a general exam, dxed me based on symptoms, then got me scripts for PT, braces, etc. She was great.

If no one in your state will or can treat you ask for referrals out of state, I had to fight hard to get approval to go outside of Maine (even had to place a call a state rep because the person approving or denying the request "felt" I didn't need surgery) so I could go to Boston to get my hip dysplasia fixed at the Childrens Hospital. It was a hard fight but I got my surgeries and life is so much better!

Dr. Emily Dougherty 540-985-8454. She is very good.

If you can make the trip UVA in Charlottesville, va has a great geneticist (Dr. Humbertson) and she can connect you with some AWESOME drs at UVA. They aren't perfect, nowhere is but they have been great with me and my VERY complex case.

I see Dr. Linda Belhorn at Triangle Orthopedic Associates in Durham, NC. She's a rheumy but she understands the different forms EDS can take--plus she's super nice.

It's worth going to a geneticist to confirm a diagnosis. There are many in the area including UNC Adult Genetics, Duke Genetics, and Wake Forest- Wake Forest University has a doctor there named Dr. Jewitt who specializes in EDS. She is great. Also, there is a genetics clinic in Asheville- Fullerton genetics and one doctor there who specializes in EDS as well.

I am seeing Steven Weiner MD 818-201-2662. He saw me right away. I really like him. He's been around for awhile and has seen it all and he has a great bedside manner!! I'm glad he is my rheumie!!

Jenny Oh in Tarzana near the hospital. Very thorough!!

I second Sean Wollaston! He was my mother's dr for many years. Very caring and thorough.

Hands down Dr. Firooz at the West Hills Medical Center

Dr Merry at Norfolk and Norwich is a rheumatologist. Although my daughter Athran De'Janta has actually never seen him, only his staff. They referred her to Genetics clinic at Addenbrooke's for EDSIII confirmation. They have also sent her to various parts of the N&NUH for lots of splinting and compression garments.

for splints you would probably have to see a physio or ot (if it s for hands) or orthotics peops, rheumy would probably just refer you to them and a gp could do that too ( re physio ask for a rheumatological physio maybe, they tend to be better informed about bendiness, and re hands ask for a hand ot rather than the general community ots), for general ideas on the way forward maybe also have a look at the english hypermobility.org website, they have lots of good info on there and you could also check their forum where peops give you all their experiences with various aids, therapies etc. good luck!

I saw Chris O'Callahan, he's the best Endo in Melbs to see for EDS related stuff, he should be able to refer you to a Rheumie Betty! Good luck:)

He's at the Austin but you might have to wait a while, I went privately: http://www.healthdirectory.com.au/Medical_specialists/Endocrinology/56208,479667/Dr%20Chris%20O'Callaghan,%20Endocrine%20Specialist%20Centre/

Thank you all so much. Think I will chase up Dr Chris O'Callaghan! Will keep you posted!

My girlfriend's grandma uses him and he's great. 702-385-6468. Mention Maria Lester, she's been going for 10+ years

hey my mom has Lyme and we go to Miguel Gonzalez in Thousand Oaks (I know you live near us cu we saw you at Costco

Hello Dan, Have you looked at our Patient Recommended Rheumatologist Directory? http://www.spondylitis.org/members/directory.aspx