I live in a small town just outside Tulsa OK. My daughter is 17 and has seen dozens of specialists and neurologist. But we have never taken her to a Tuberous Sclerosis...
Maria W. replied:
I have always thought the same. We live in Jacksonville FL and am not even sure where a TS clinic is near us. Good luck and many blessings to you and your family
Kenneth C. replied:
Both of my younger children see Dr. Sparagana. He is definitely the one to see. TSR Clinic specialize in TS. My daughter has seen him since she was one years old.Praise God her siezures have stopped she has yearly checkups. My son has no signs of TS but he does carry the gene.
Missy A. replied:
There is on in St. Paul, MN. Dr Frost is who you would see.
Susan M. replied:
Maria wright the http://TSAlliance.org/ can help you . There is a list of clincs on the webaite as well as lots of useful info to help u , your family and caretakers understand Tsc ..they are there just to help u !
Allison D. replied:
There is also a TS clinic at Scottish Rite in Dallas if Houston is too far for you
Oscar W. replied:
TS Memphis!!
Hannah T. replied:
My parents talked about TS clinics but decided that a good neurologist was better. I'm 17 and I'm from Norman, OK and I used to see a neurologist in Dallas but was recommended to see Dr.Hernandez at Cook Children's after he retired. I also had a left temporal lobectomy at Cook's in 2011. The staff at Cook's are really helpful and are very knowledgeable about dealing with all kinds of epilepsy diagnoses.
Heather L. replied:
Just FYI for some of my fellow Oklahoma people. We now have a new community TS Alliance of Oklahoma that just started hosting gatherings and is also available for support. https://www.facebook.com/xsability and myself are the co-chairs and are happy to help with any questions:)
Bridget S. replied:
My vote is for Memphis, however a few others live in OK and might be able to tell you more. https://www.facebook.com/ldrich
Kaye B. replied:
My daughter and I are currently trying to get her into a TSC clinic. Her neuro doc is only treating the Epilepsy. He tells her to see her GP about her other TSC issues. I asked him why he won't order all the scans she needs done since they pertain to the disease, and I have yet to get a straight answer from him. I say a TSC clinic is best.
Lisa T. replied:
TSC Clinic in Dallas
Geri M. replied:
Jess Noviski if you have any questions about Scottish Rite or Dr. Sparagana please call or text me 903-495-9024.Or any of you Fellow Dallas area mommies!!
Caryn S. replied:
Houston or https://www.facebook.com/dallas.blumhagen
Betty P. replied:
Shriners Hospital in Dallas is where my 8 year old grandson goes. They are fantastic with the care he has received. And he loves it there.
Jess N. replied:
According to TS Alliance Dallas clinic only accepts Texas residents. Maybe Ft. Worth or Memphis would be a better option for her.
Jonathan K. replied:
TSC Clinic at Scottish Rite in Dallas. We drive there from Austin.
Geri M. replied:
Ts clinic at Texas Scottish Rite Hospital in Dallas. She would see Dr. SPARAGANA. we see him and he is amazing.
Any recommendations for a good migraine specialist in the DMV area? Not just a neurologist, but an actual migraine specialist. They seem a bit hard to find! Thanks,...
Jeffrey B. replied:
Tara... Listen If these migraines are really rough and you ve explored therapy with your GP I want you to checkout the "headache center" at Georgetown University Hospital ... I ve attached the information New Patient Information To make an appointment at the Georgetown Headache Center, call Georgetown MD, 202-342-2400, or Monday–Friday, 8 a.m.–8 p.m. the toll free number 866-745-2633.
Devorah F. replied:
List is old, did you see this? http://www.washingtonian.com/articles/health/washington-doctors-who-treat-migraines-and-headaches/
Kari G. replied:
Mallory Shear may have a suggestion for you....
Rachel O. replied:
I see Dr. Albert Galdi at the Wash Neurology Center. He's a neurologist who specializes in some other stuff as well, but he's good with migraines. I think that most of their docs are.
Sage M. replied:
I had a migraine that lasted over 2 years (no break). I didn't find any relief until I went to Johns Hopkins Headache Center. Here is their link: http://www.hopkinsmedicine.org/neurology_neurosurgery/specialty_areas/headache/
Ilana D. replied:
Try the Neurology Center in Rockville. I see Dr. Lin for my migraines. http://www.neurologycenter.com/ If you want other thoughts, let me know. I've had migraines for over 20 yrs, most of which I've lived in the DC metro area so I've tried several docs...
Tara G. replied:
Devorah Firestone: No, I hadn't seen it. Thank you!:)
Kelli B. replied:
My son's neurologist suffers from migraines himself, so his expertise is as much personal as professional. Try Dr. Jakkampudi in Columbia.
I'm looking for a new neurologist for my daughter who has tsc does ne one know a good one in the Chicago area... ???
Wendy H. replied:
Dr. Eugene Schnitzler at Loyola in Maywood. 708-216-3407. He is wonderful as well as all of the staff.
Gwen P. replied:
There is a clinic in Chicago. Contact info on www.tsAlliance.org
Nancy F. replied:
I would not go to Dr Kohrman but Dr Marcuccelli is so good. He is easy to talk to. Open to any suggestions and his nurse will call you right away if there is.any issues.
Missy L. replied:
Nancy Flores.that is so good to hear because Dr kohrman does non of that ...
Eva K. replied:
Dr Kohrman call you right away if you E mail him he's all about being the computer.
Jen D. replied:
Dr Epstein at Luries Children's Hospital. He is familiar with TSC.