Neurologists in Richmond, VA

There are helpful EDS groups out of Minnesota that will be helpful

There is an EDS geneticist in Kansas or Missouri. No neurosurgeons but closest are Dr Rosner in NC or Capocelli in Arkansas but if CCI is suspected I would go to either Rosner, Greenfield in NYC, Henderson In Maryland only

Helpful Websites http://www.conquerchiari.org/index.html - Conquer Chiari http://weillcornellbrainandspine.org/condition/chiari-malformation http://www.csfinfo.org/ - Chiari & Syringomyelia Foundation Ehrick Garions Law for Chiari Www.chiariact.org http://www.upright-health.com/tonsillar-ectopia.html http://www.ehlers-danlos.com http://www.ednf.org Helpful Doctors Dr Greenfield NY https://weillcornell.org/jpgreenfield Dr Rosner NC www.mjrosner.com/ Dr Douglas Brockmeyer Salt Lake City, UT http://healthcare.utah.edu/fad/mddetail.php?physicianID=u0034828 Dr Grant CA https://med.stanford.edu/profiles/gerald-grant Dr Richard Anderson New York City, NY http://www.columbianeurosurgery.org/doctors/richard-c-e-anderson/ Dr Henderson - MD http://metropolitanneurosurgery.org/ Dr Sandhu - DC https://www.doximity.com/pub/faheem-sandhu-md Dr Ian Heger Augusta, GA http://www.augustahealth.org/find-a-doctor/find-a-doctor?id=1083 Dr David Frim - Chicago, IL http://www.uchospitals.edu/physicians/david-frim.html Dr Taryn Bragg Will soon be at Phoenix Children's Hospital in Arizona http://www.phoenixchildrens.org/medical-specialties/barrow-neurological-institute/physicians-staff Dr Holly Gilmer MI http://www2.mhsi.us/doctors/holly-s-glimer/ Dr Trumble FL http://www.neurosurgeons4kids.com/medical-team/physicians/eric-trumble Dr David Limbrick St Louis, MO https://wuphysicians.wustl.edu/for-patients/featured-physicians/david-limbrick-md-phd Dr Francomaro – Geneticist - http://www.gbmc.org/adultgenetics Top Chiari Specialists (highly recommended as top Chiari Neurosurgery Specialists) Dr. Fraser Henderson Adult surgeon Spine Team Maryland 8116 Good Luck Road, Suite 205 Lanham, MD 20706 (also in Bethesda, MD) Michael J. Rosner, MD, FACS, FCCM - Adult NS Neurological Surgery 80 Doctors Drive, Suite 4, Hendersonville, NC 28792-720 Primary: 828 684-1076 Dr. Faheem A. Sandhu (over age 14) Georgetown University Hospital 10401 Hospital Dr Ste 101 Clinton, MD 20735 301-856-2323 Medstar Georgetown Neurosurgery 3800 Reservoir Rd NW #7 Washington DC 20007 202-444-4972 Dr. Jeffrey Greenfield Pediatric and adult surgeon Mail: 525 E 68th St Box 99 Office: 1305 York Ave New York, NY 10065 (212) 746-5454 (212)-746-2363 opt 1 Dr. Anthony L. Capocelli Adult surgeon, can consult with Pediatric cases possibly ARKANSAS MUSCULOSKELETAL INSTITUTE 10301 Kanis Road Little Rock, AR 72205 Local: 501.604.6900 Toll-Free: 800.264.5633 Fax: 501.604.6941 Dr Petra Klinge - Rhode Island Hospital http://www.rhodeislandhospital.org/services/neurosciences/neurosurgery/petra-klinge.html Neurosurgeons that may specialize in Complex Chiari (Chiari with Ehlers Danlos Syndrome) are Dr Henderson, Dr Greenfield, Dr Sandhu, Dr Klinge, Dr Rosner, Dr Capocelli, Dr Bragg

Dr. Shamsher Dwivede, VIMHANS (+91-11 29849035) and Dr. Anshu Rohatgi, Sir Ganga Ram Hospital (+91- 11-42251439)

Dr Siva ex Siemens' doctor suggests Dr. Rakesh Agarwal in Apollo Hospital 9811010856

Ritesh Mittal can you help. Anjul Patney dada is in serious condition.

Dunno any in delhi. Dr Lokendra Singh is from Nagpur and excellent

Rajasekhar Reddi at Max Super Speciality Hospital, Saket

*Dr. David Frim* University of Chicago Children's Hospital (may also treat adults) Pediatric Neurosurgery 5841 S. Maryland Avenue Chicago, IL 60637 Office Phone: (773) 702-2475 Office Fax: (773) 702-5234

https://www.osfhealthcare.org/physicians/profile/727/julian-j-lin-md/ Not a specialist but very Chiari Aware

Donald Elliott im the same,iv always had it but it never bothers me...turns out iv ppms too:/ ...never asked about it as just Xd

I have it too and it's not always associated with MS. Tinnitus is the medical term I think

Dr Eric Trumble in Orlando Florida

https://www.facebook.com/117074075018319 Neurological & Spine Institute / Dr. Willard Thompson / Savannah, Georgia, but a wonderful surgeon & staff that worked on me recently....

Dr Capocelli in Little Rock

Dr Capocelli is amazing. He has performed 2 surgeries on me. Him and his nurse Tana are awesome and they both go above and beyond for their patients.

Dr. Capocelli at Orthoarkansas in Little Rock is wonderful.

Dr. Capocelli is amazing!!

Dr. Capocelli in Little Rock is a specialist and closest to you. He is awesome.

Thomas Smith at Regional Memorial. He's the best & I've been seeing him for years.

Read about POTS. Www.potsplace.com Also trust your gut, if you think you need to go to the hospital you probably do!

Doctor Waller. He can be kind of weird but he's awesome. I've been going to him for years. He's at Midlothian and 288.

8740 landmark rd. Richmond VA 23228 804 592-4905

And this is why to stay away from there. https://www.facebook.com/RyanMcgeechiariangel/

Feel free to join my NY group as well... https://m.facebook.com/groups/792498270855055?tsid=0.3695731861625775&source=typeahead

I am leaving Buffalo on Tuesday to go to Hershey Medical Center because there is not an expert here and iI have had five surgeries in four years and need at least two more

I haven't heard about him. Traci can you share anything Bill-Traci Pressley; she is from Knoxville. I live in the Tri-Cities of TN. I had surgery 2015 Chiari Malformation C 1-2 then C-spine 2-7 2016 by Chiari Specific Neurosurgeon Dr. Michael Rosner in Hendersonville, NC next to Asheville. I had a wonderful experience with him and the hospital Park Ridge. He isn't in network with insurance companies but he files your insurance and accepts Medicare. I didn't have to pay anything upfront.

He had a malpractice case last year. http://www.fjcadr.com/uploads/3/2/5/7/3257891/2016-02-17_wilson_sanctions_ruling.pdf

Dr Greenfield in NYC. http://weillcornellbrainandspine.org/faculty/jeffrey-p-greenfield-md-phd

Dr. Trumble- Orlando Dr. Greenfield- NYC

Dr. Greenfield in NY. I think Dr. Trumble in FL

Carrie Bird is in your area, I believe.

Helpful Websites www.chiariact.org www.asap.org - American Syringomyelia & Chiari Alliance Project http://www.conquerchiari.org/index.html - Conquer Chiari http://weillcornellbrainandspine.org/condition/chiari-malformation http://www.csfinfo.org/ - Chiari & Syringomyelia Foundation http://www.upright-health.com/tonsillar-ectopia.html http://www.ehlers-danlos.com http://www.ednf.org Helpful Doctors Dr Greenfield NY https://weillcornell.org/jpgreenfield Dr Rosner NC www.mjrosner.com/ Dr Douglas Brockmeyer Salt Lake City, UT http://healthcare.utah.edu/fad/mddetail.php?physicianID=u0034828 Dr Grant CA https://med.stanford.edu/profiles/gerald-grant Dr Richard Anderson New York City, NY http://www.columbianeurosurgery.org/doctors/richard-c-e-anderson/ Dr Theodore AZ. http://www.bnaneuro.net/Theodore-Bio.html Dr Henderson - MD http://metropolitanneurosurgery.org/ Dr Sandhu - DC https://www.doximity.com/pub/faheem-sandhu-md Dr Ian Heger Augusta, GA http://www.augustahealth.org/find-a-doctor/find-a-doctor?id=1083 Dr David Frim - Chicago, IL http://www.uchospitals.edu/physicians/david-frim.html Dr Taryn Bragg Will soon be at Phoenix Children's Hospital in Arizona http://www.phoenixchildrens.org/medical-specialties/barrow-neurological-institute/physicians-staff Dr Holly Gilmer MI http://www2.mhsi.us/doctors/holly-s-glimer/ Dr Trumble FL http://www.neurosurgeons4kids.com/medical-team/physicians/eric-trumble Dr David Limerick St Louis, MO https://wuphysicians.wustl.edu/for-patients/featured-physicians/david-limbrick-md-phd Dr Francomaro – Geneticist - http://www.gbmc.org/adultgenetics Top Chiari Specialists (highly recommended as top Chiari Neurosurgery Specialists) Dr. Fraser Henderson Adult surgeon Spine Team Maryland 8116 Good Luck Road, Suite 205 Lanham, MD 20706 (also in Bethesda, MD) Michael J. Rosner, MD, FACS, FCCM - Adult NS Neurological Surgery 80 Doctors Drive, Suite 4, Hendersonville, NC 28792-720 Primary: 828 684-1076 Dr. Faheem A. Sandhu (over age 14) Georgetown University Hospital 10401 Hospital Dr Ste 101 Clinton, MD 20735 301-856-2323 Medstar Georgetown Neurosurgery 3800 Reservoir Rd NW #7 Washington DC 20007 202-444-4972 Dr. Jeffrey Greenfield Pediatric and adult surgeon Mail: 525 E 68th St Box 99 Office: 1305 York Ave New York, NY 10065 (212) 746-5454 (212)-746-2363 opt 1 Dr. Anthony L. Capocelli Adult surgeon, can consult with Pediatric cases possibly ARKANSAS MUSCULOSKELETAL INSTITUTE 10301 Kanis Road Little Rock, AR 72205 Local: 501.604.6900 Toll-Free: 800.264.5633 Fax: 501.604.6941 *Dr. Eric Trumble * Pediatric and adult surgeon Walt Disney Pavilion @ Florida Hospital for Children 615 E. Princeton Street, Suite 540 Orlando, Florida 32803 Phone: 407.236.0006 Email - etrumble@neurosurgeons4kids.com Dr Petra Klinge - Rhode Island Hospital http://www.rhodeislandhospital.org/services/neurosciences/neurosurgery/petra-klinge.html Neurosurgeons that specialize in Complex Chiari (Chiari with Ehlers Danlos Syndrome) are Dr Henderson, Dr Greenfield, Dr Sandhu, Dr Klinge, Dr Rosner, Dr Capocelli, Dr Bragg, Dr Brockmeyer

Reach out to Dr Frim in Chicago. You can email him directly thru the University of Chicago hospital website. He is one of the top specialists and will review your MRI and symptoms and call you with his opinion. I've been with him since 2013 when my previous non-specialist surgeon abandoned me.

Dr Anthony Capocelli is amazing

Dr. Heffez is... never mind, let's just say that I don't care for him. I love Dr. Frim. He is an amazing man.

I went to the UW hospital in Madison and Dr. Hannah did my decompression. I liked him and I believe he is a great surgeon...I just don't know about calling him a Chiari specialist. He knows there is no cure, but also didn't understand why I had so much cone back about 4 mom this post-op, because he hadn't had that happen with any of his other Chiari patients. I do know he will do all of his own test. I feel he is worth looking into.

That's why I refused to have Dr Heffez do my surgery. I heard so many horrible things about him. Try and see Dr Iskandar at the uw Madison America family children's hospital. He's done hundreds of Heffez's mistakes and messups.

You sound a lot like where I am right now. I recommend Dr Henderson in Maryland or Dr Greenfield in NY.

Dr. Greenfield in NYC the absolute best

Dr Dempsey at UW Madison did my decompression surgery back in Oct 2015. I had a wonderful experience with him. I had to go back and get a shunt but after that I have felt so much better. Feel free to contact me whenever.

Hillary Campfield I am so sorry, I was also decompressed by heffez and your story sounds so much like mine. I'm going to attach my story. Hi !! I had surgery with dr Heffez, surgery went great, recovery went great.... For six months when I reherniated . I contacted dr Heffez who said he cured me

Most in that area would recommend Dr Greenfield

We live in Ohio & will travel for Dr. G also.

Is Chiari the only diagnosis? If so, Dr Greenfield, Dr Bolgonese, and if it there is spinal cord or complex cord issues involved, Dr Michael Nosko. I am in central NJ. I interviewed 4. All suggestions matched. I choose Dr Nosko.

I live in Long Island and I go to Dr. Greenfield

I live in Long Island too and Dr. Greenfield did my decompression last Oct.

Dr G is a specialist and one of the best. Id say it's with it

I'm upstate NY and see Dr. Greenfield, NYC

I am from Fulton and I am being referred to Dr. Lawrence Chin. He is right in Syracuse. not sure how good he is but with my insurance and travel difficulties I can not be picky at this time!

Dr Boop, out of Memphis, TN we are seeing him tomorrow

Dr. Trumble in Orlando

I'm not sure if Dr Capocelli takes children, it might just depend on the case. He's in Little Rock, Arkansas

Dr. William Boydston at children's of Atlanta is wonderful.

I live on the gulf coast and we been to New Orleans, mobile and didn't like them we go to Jackson MSU now but only been to one visit and it was the initial visit I love them up there, they have been the only ones to answer my question and my son is eleven

Dr. Henderson DOES accept insurance AND new patients. If you can please update that, that would be great.

Dr. John Ward at MCV

I am friends with Alan Schulman and he is a lovely and smart man

Alan Schulman

Dr. Kim Harris, Dr. Hegab,

Dr. Kim Harris, Dr. Hegab,

I work with William White,MD for the athletes at the U of R.

Dr. White's office is on Parham Rd at Fargo.